3 tips for navigating pregnancy despite a bipolar diagnosis

My blog turns four years old this August. Having come to this little corner of the internet for nearly four years, writing my story of how I've navigated pregnancy and beyond despite living with the diagnosis of Bipolar disorder type 1, I tend to get quite a few questions from my readers. The most common ones come from young women who like me, wondered how they would be able to manage their illness and still be able to care for a newborn. A newborn who would grow into a baby with many demands.

I certainly am not perfect, nor am I an obstetrician or psychiatrist. I'm just a regular mom who, after having found out she had bipolar disorder, wasn't going to let it get in the way of her dreams of having a family. These are my reflections, looking back on my experiences of having my two children (now 6 and 4). This is what happened to me, and how I'd do things differently if I were to have a third child. (We are 99% sure we won't be having another one, in case you're wondering.)

Accepting the diagnosis

Bipolar disorder is a challenging, life-long illness. The first year or two of learning to live with the diagnosis can be devastating and all-consuming. When I was first diagnosed, ten years ago at the age of 26, I had to resign from a career that I excelled at in order to focus on getting well. It took an entire year for me to work with my doctors and therapist to find a medicine and figure out a treatment plan that worked for me. I was able to overcome severe depression and crippling anxiety, and even suicidal thoughts thanks to the vigilance and support of my husband and parents. Once I found stability, and was able to maintain it for a year, my thoughts of starting our family began to take root.

Although I was able to taper off my medicine (under the close supervision of my psychiatrist), and I had a normal, healthy pregnancy, we were not prepared for what would happen next. Not only was having our first child an incredible shock to my system (I had an emergency C-section after 17 hours of laboring - no pushing, but since the baby wasn't tolerating contractions and I wasn't dilating, my OB made the call for surgery), but nothing can prepare you for how you'll react to motherhood. On top of all this, I had put an enormous amount of pressure on myself to breastfeed. I thought, from all the pregnancy literature I had been devouring before the baby arrived, that breastfeeding was the only acceptable means of feeding the baby.

I was wrong and I learned the hard way.

Even though I knew that lack of sleep was a trigger for me, I didn't realize how little I'd be sleeping once the baby arrived, especially due to trying to nurse. I barely slept at all in the hospital since the nurses checked my vitals every hour because of the surgery. Exhausted doesn't even begin to describe how I felt. But I couldn't take my eyes off our son. We had created a baby. I was in awe of this little person I was holding. It didn't seem real. Maybe partly because I was headed into the throws of mania even before we left the hospital.

1. Have a plan for once you get the baby home

With our first baby, I did everything and wouldn't let anyone help. I was trying to succeed at breastfeeding and if someone gave the baby a bottle, he might not go back to nursing. Which meant that I was always the one getting up in the middle of the night to feed and change the baby.

With our second, we had a plan. For the first two weeks, someone would be available to take the middle-of-the-night feedings. My parents stayed with us for a week, so they took turns during the first week home, and then my husband took over during weeks two to four. This allowed me to get a solid stretch of 6-8 hours of sleep a night, critical to my recovery from the birth (a repeat c-section) and to prevent mania from creeping in. I learned to protect my sleep, and because of this, was able to stay mentally healthy once we brought our daughter home.

2. Don't feel guilty for formula-feeding

I breastfeed our son for the first four weeks of his life, and then ended up in the psych ward for a week because of postpartum psychosis. Having to stop breastfeeding was devastating, but on the way home from the psychiatric ward of the hospital I realized that being healthy for him was more important than anything. If I didn't have my health, I wouldn't be able to be present as a mother, no matter how I wanted to feed him.

For our daughter's arrival, we planned ahead of time that I would not breastfeed. Instead, I got excited about picking out bottles and supplies to formula-feed her, and my postpartum time with her was so much more enjoyable since I didn't have the extra pressure to make nursing work. I ended up having antenatal psychosis (mania during pregnancy) during the first trimester of my second pregnancy, so I had to take antipsychotics and a mood stabilizer during the pregnancy. Nursing was never an option and I accepted this reality.

3. When a medication works for your condition, weighing the benefits and risks is critical

Having experienced postpartum psychosis after the birth of my first child, we were better prepared, or so we thought, to navigate a second pregnancy successfully. We knew that I needed to protect my sleep, and I planned from the moment we decided we wanted to have another baby that I would formula-feed since I'd be returning to my medicine after the first trimester. Going off my medicine for the first trimester was my mistake.

From my research, I knew there was a risk to the fetus of a heart defect during the first trimester of pregnancy when women took the medication I was taking during pregnancy. So I made a plan with my psychiatrist and the high-risk OB-GYN that I'd taper off the medicine when I found out I was pregnant, and I'd return to it once I cleared the first trimester. Only I hadn't weighed the benefits of staying on the med against the risk I was taking.

I was closely monitoring things, testing for pregnancy on the earliest day possible following my fertile period. When I finally got a positive test, my excitement over finally being pregnant (we tried for about nine months) took ahold of my body and would not let go. My mind raced with potential baby names as I'd lie awake in bed not able to fall asleep.

Would it be a girl? How would our toddler react when he met his new sibling? What would it be like to be a Mommy to two little ones?

Within a week of very little sleep I was manic and it was quickly leading to psychosis. Having witnessed my manic symptoms before, my husband quickly took action and had me hospitalized. I was five weeks pregnant with our daughter.

When I returned home, medication was required to keep me stable. I went back to the high-risk OB-GYN for a post-hospitalization check-up and was scheduled for regular checkups and monitoring of the baby throughout the pregnancy. Luckily, she was born completely healthy and I had a wonderful postpartum period with no complications. I learned that my risk for psychosis due to the lack of medication in my system was far greater than the risk to my baby in utero.

*****

If you're considering pregnancy or are currently pregnant, I urge you to work closely with your psychiatrist and OB-GYN to monitor and manage your bipolar symptoms during pregnancy and in the postpartum period. There are great resources available online to help you as you navigate pregnancy: Postpartum Progress, Postpartum Support International, and if you're in the Washington, DC metro area (Virginia, Maryland and the District), the newly developed DMV-PMH Resource Guide maintains a comprehensive and current regional directory of specialized mental health providers, support groups, advocacy organizations, and other relevant clinical resources pertaining to perinatal mental health.

There are resources available. Please don't hesitate to ask for help. You can be a mom despite bipolar.

We Need Universal Mental Health Screening for Women Having Babies

I experienced both a postpartum mood disorder (postpartum psychosis) and a perinatal psychiatric issue (a manic episode which led to psychosis) very early on in my second pregnancy. I had been diagnosed with Bipolar Disorder two years before my husband and I decided to start a family, and yet I found limited support and information in my quest to have as healthy a pregnancy and postpartum experience as I could. When I think back to that time in my life, I strongly believe that if I had received better screening - particularly after my first pregnancy - much of the trauma and heartache of what I went through could have been avoided.

Before I experienced mental illness on a personal level, my ignorance of the various forms of psychiatric conditions caused me to judge people whose stories were covered in the media. I remember watching news coverage of the Andrea Yates trial thinking HOW COULD THAT HAPPEN? And then it happened to me seven years later. Thank God my outcome was drastically different.

Just this week a pregnant mother and her three children were rescued in Daytona Beach, after she drove the family minivan into the ocean. A family member had called police hours earlier to express concern over her strange behavior, including talk of demons.  On the 911 tapes, you can hear the sister request a well-being check because "she's like having psychosis or something."

This woman literally saved her sister's life, the lives of those three children and the life of her sister's unborn baby with that call for help.

They were lucky to have avoided an outcome similar to that of the Andrea Yates case. Simply because someone close to the person who was suffering took action.

Now it's our turn to take action. There is an urgent need for changes in the way we screen women during pregnancy and postpartum in order to stop incidents like these from ever occurring in the first place.

Maybe this woman's sister recognized what her family member was going through because of the increase of more open dialogue about women's mental health issues. I can feel the wave of mental health awareness gaining momentum and hope that very soon there will be less ignorance out there and more acceptance. Because together we can make a difference.

Which is why I support this important White House petition to create mandatory universal mental health screening for pregnant and postpartum women. Did you know that suicide is the leading cause of death for women during the first year after childbirth? Or that 1 in 7 women will experience a mood or anxiety disorder during pregnancy or postpartum, yet nearly 50% remain untreated?

We need change. We need to screen every mother, every time to prevent and treat perinatal mental illness.

Recovery is possible - I am a perfect example of this. But wouldn't it be incredible if in the future we could catch cases like mine before they escalate? Before they lead to suffering and even death? No woman should have to suffer in silence because she's afraid to admit what she's thinking or feeling. We need to provide her with the chance to find recovery early. We need to recognize the signs and symptoms and take action.

Please take a moment to sign the petition: Every Mother, Every Time. Creating a WhiteHouse.gov account takes only a minute and there are simple tools to share the petition on Facebook and Twitter once you have submitted your signature.

This movement will save lives. We need 100,000 signatures to get the attention of the Obama Administration. Let's come together to make our voices heard on this critically important issue.

Every Mother, Every Time.

Tweet about the petition with the hashtag #EMET:

[Tweet "Universal mental health screening 4 every pregnant & postpartum woman http://ow.ly/uho8X. #EMET"]

Thank you for helping to spread the word.

My Last Visit to the Psych Ward

 5 weeks after my fourth and most recent hospitalization: May 21, 2010  I shuffled into the day room, sticky soles of my grippy hospital socks licking the cold linoleum floor. Everyone mingled in this spacious room, the brightest spot in the house that we were living in for the time being. Sanity had begun to return to my foggy brain. Finally. There was such relief with being able to recognize a thought, rather than being led by a force hidden, so far beyond my control. For two days I had been aimlessly wandering the long, dank halls of the psych ward. Incoherent and lost. The perfect pharmaceutical cocktail was starting to even me out. And I was counting the hours until I’d be released to the care of my husband. I was desperate to see my son.

I noticed that the flowering plant on the counter of the open nurse's station had withstood my incessant plucking, as it still had about a dozen blooms, by some miracle.

“She loves me. She loves me not. She loves me.” I debated, pulling at the tender petals of a flower I had stolen late into the night on my evening of admittance. “I know it’s going to be a girl. But what will she name it?” I mused to myself out loud, lost in the psychosis which my pregnancy had spun me into.

Later that night, or maybe it was the following morning, one of the nurses tried to get me to eat. “You need to eat something, sweetheart. For the baby. Here, try this,” she urged, shaking the small box of Apple Jacks she had brought from the kitchen down the hall. We were in my sterile little patient room, a desk between us. She sat in a chair across from me, attempting to coax me into taking a few bites, as I sat in another chair, shaking, sweaty and weak from exhaustion. A small container of milk was ripped open on one side to form a drinking spout, but hadn’t been touched. I felt a little like Alice in Wonderland, staring at the items in front of me labeled "Eat Me" and "Drink Me."

I may have taken a few bites, a sip of milk, but my mind told me she was trying to poison me. I made sure not to eat or drink too much, for fear of never waking up.

Eventually I did decide to lie down and rest on the stiff single bed with the scratchy white sheets in the far corner of the room. No one slept in the other bed in the room. I had my own private room. Good thing, too. I needed to just sleep, to dream off the mania. It had taken two days of the nurses pumping me with antipsychotics until I finally relaxed enough to sleep.

I emerged a day later, after a long, hard sleep, to “meet” the other crazies in the day room. I might have met them a day or two earlier, but my memory was a slice a Swiss cheese when I was manic, so I didn’t remember. Two did stand out, though.

Tony was a big, burly Italian guy who chain-smoked and had the cough to show for it. He was warm and engaging, and I liked him immediately. He made me smile with his obscene jokes, a welcome escape from the situation we had all found ourselves in. Tony was constantly searching for a number in the phone book. When he wasn’t in the smoker’s lounge, he was on the phone pleading with the person on the other end to come pick him up.

Mary had left the day before. She was young like me, and claimed she was also very early pregnant, although I didn't believe her. Hell, I didn't even believe I was five weeks along. We had promised to keep in touch, but I knew there was no way I’d live up to my end of that deal. I didn’t like to take hospital memories home. Art therapy projects were an exception. Nothing like a glimpse into a mad mind for old time’s sake. So instead of giving her my number when she wrote down hers for me, I hugged her goodbye, telling her it would be too painful. She understood.

The exercise lady arrived in the afternoons, swooping in to lead the patients in yoga or dance sessions in the day room. She’d turn on 80’s pop music and we’d bop around, forgetting about the frustrations attached to having lost touch with reality. During those moments, everything seemed to disappear and for three minutes I was okay. Hips swayed, eyes closed softly so I could really feel the music. But as quickly as her sessions began, they were over, and we were back to waiting for our next activity to pass the time until we’d see the outside world once again.

Held for forty-eight hours of insanity, twenty-four for the meds to really start kicking in, and another forty-eight and I was good to go. A final meeting with the staff psychiatrist and I was given my ticket out of that joint. It had been my fourth stint in a psych ward, and it was a house of medicine I was hoping not to have to visit again for a very long time, maybe even never.

Ready to get back to my own home, to my family where I’d be nursed back to complete health so I could get back to being the kick-ass mama and wife they loved. This last visit to the psych ward solidified my commitment to staying well. For myself, for my husband and for our son and the unborn baby I was carrying. Not another day would pass without that little salt pill sliding down my throat before bed. My family deserves this promise. And they’ll get it, forever and ever.

Trusting My Sacred Scared

One of my favorite writers posted a new blog this week about being afraid in life and yet going for what we want anyway, just showing up. She talked about how if we all waited until we were all shiny and perfect and ready, we’d be waiting for eternity. No one is flawless, we’re all messy and complicated, she goes on to say. And if we could all start opening up and talking about what scares us the most, the thing we’re afraid to admit out loud because we’re scared it would make us unloveable, if we do this, we reveal our humanity to the world. When those around us see us taking off our armour, we hear them breathe an audible sigh of relief, and instead of living a life in fear, we can face them bravely together. Because, Love Wins.

I have so many fears. I wrote some of them out last summer in a post I titled: The Truth About Living Openly With Bipolar Disorder. I was scared to hit publish on that post, but I’m glad I did. Because people related to it. They saw me showing my messy, imperfect life and they got it because theirs is messy and imperfect, too.

Now, seven months later, those same fears are all still here, only now it seems as if they’ve multiplied like bacteria in a petri dish.

Lately it feels like not only am I worrying about whether I made the right decision, at the right time, to open up about living with a mental illness, I also worry about whether the show will be a smashing success or a big, fat flop. {I’m banking on the huge success, especially since I know some of the brilliant, talented individuals signed up for auditions, but still, the fear creeps into the back of my mind when I’m not having a confident day.} I’m scared that our petition to convert This Is My Brave, LLC to This Is My Brave - the Foundation, a 501(c)3 non-profit will fall through, and even if it does work out, how will I figure out the grant-writing process having never done it before and will I ever be able to make a living out of my passion for mental health advocacy work so that I can contribute financially to our family? I am also intimidated by hard-core activists who might say that what I’m doing with the show is just a song-and-dance and it will never make a difference to the state of mental health programs in our country.

Man, hitting publish on this one is going to be incredibly unnerving.

I hate that I have these fears. On a good day, they barely whisper. But on a day when I can’t catch a break, it’s as if they are taunting me just to see if they can get a rise out of me. They choke me and sometimes cause me to worry so much I'm paralyzed with fear and in turn, nothing gets done and I stress even more about my ability to pull this off.

The thing is, even though these fears remain, I am the happiest I’ve ever been in my life. I know in my heart that I’m doing the right thing with my life. The emails I receive from people who have been touched by my writing drive me to keep going. To keep putting one foot in front of the other and to keep tapping on my keyboard each week. And this show/non-profit organization/community of people who are supporting each other through living with a mental illness, they are my tribe, my flock. I want them to know that I love them just the way they are and that they make me feel less alone and I hope I do the same for them. We’re all in this together and it feels so much better than the loneliness of hiding from what we’re afraid of.

Do you know the biggest lesson I’ve learned through this process of being scared and vulnerable and talking about my fears and my messy life openly? I’ve learned to trust my gut. That place in the middle which you can only sense when you’re super quiet and listening really, really closely, with intention to find purpose. I can feel it in my bones that I’m meant to do this and it brings me peace, no matter how loud my fears are on a particular day.

I’ve experienced what I have because I was meant to come out on the other side so that others can find hope. I truly believe this. So what if I have no idea what I’m doing? So what if I make mistakes along the way? These days I’m able to find comfort in the fact that I’m trusting the world with my messy, beautiful life.

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Good Cop, Bad Daughter - Book Review & Giveaway

In November of 2012, I attended my first writer’s conference on Sanibel Island in Florida with a pen in hand and the nervous anticipation of a freshman on day one of English 101. I couldn’t wait to learn tips and technique from the master presenters and instructors, and was eager to practice my craft during the workshops and through the homework they assigned.

The conference was incredible and after meeting such inspiring, brilliant talent - in both the faculty and attendees alike - I left there with the confidence to finally call myself a writer. I came home with renewed drive and ambition, ignited by the tribe I had surrounded myself with all weekend.

The schedule was packed so there was little time to talk to other attendees in between classes, but I did have a chance to make a few strong connections and we’ve kept in touch over social media and email. One of the friends I met at Sanibel was Karen Lynch. She had just finished reading a piece aloud in class, and it was so vivid and stunning, I had to compliment her afterwards. As usually the case when you strike up a conversation with a fellow writer at a conference, we asked each other what we were working on. It just so happened we had the topic of mental illness as common subject matter.

We exchanged email addresses and promised to keep in touch and I was thrilled to learn that her book was recently published - the same book from which she had read an excerpt in class at Sanibel. When her publisher contacted me via email to see if I’d like to review the book and do a giveaway, I jumped at the opportunity to read it before it was released.

Amazon Book Description

Publication Date: February 3, 2014

Karen Lynch was an unlikely person to become one of the first female cops in San Francisco. Raised by a counter-culture tribe in summer of love Haight-Ashbury, she was taught to despise “The Man.” But when the San Francisco Police Department was forced by court order to hire women, she found herself compelled to prove to the world that women could cut it as cops, a betrayal that caused her police-loathing mother to brand her a Nazi.

Good Cop, Bad Daughter is an often humorous, poignant adventure story of Karen’s journey from pot-smoking Cal student, to Renaissance bar serving wench, to street cop. Recounting the story of the first women cops, she reflects on life with her bi-polar mother, and comes to realize her chaotic past unwittingly provided the perfect foundation for her chosen career.

As she finds family and acceptance in a men’s club that never wanted her as a member, she fears she will one day face her mother, not as a daughter but as an arresting officer. When that day came, and it did, her private life and her career would collide dramatically.

As a mother living with bipolar disorder, the book’s description definitely intrigued me. Karen survived what can only be described as an unfathomable childhood at the hands of an unmedicated, mentally ill mother. I was sucked in from the first chapter and couldn’t stop reading.

Despite the lack of adult supervision and guidance throughout her upbringing, Karen found the fortitude within her to hold on and forge ahead. The spontaneous cross-country and international travel excursions at the hands of her mother were riveting and her determination to make it through the police academy had me cheering for her to cross the finish line.

Karen’s ability to relive her tumultuous early years on the page with honesty and without shame is what makes this such a compelling book. She provides the reader with an inside view into the life of someone struggling for survival because her mother is failing at fighting the internal demons of mental illness. Those years of struggle and the gut-wrenching resilience that got her through created the perfect prelude to her future career as a cop.

This is a story about how one woman channeled her pain and sense of abandonment and used the energy to create a better life for herself and her family. Good Cop, Bad Daughter is a book you won’t soon forget.

Enter to win a signed copy of Good Cop, Bad Daughter: Memoirs of an Unlikely Police Officer! (Available NOW via Amazon on Kindle or in paperback!) US and Canada only, please.

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Letting Go of the Secret

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Living a life with an ever-present fear of revealing a certain secret part of yourself isn’t truly living. I know, because I’ve been there. Being caught up in an inauthentic version of myself wasn’t the way I wanted to live my life. And so I made some changes. The results were incredible.

At twenty-six years old, newly married and at the peak of my career as an agency recruiter, I was hit with mania. It came without warning, and felt exactly the same as slipping on black ice and landing flat on my back, the wind sucked out of my lungs and a searing pain pulsing through my bones. I was terrified of what was happening in my brain. I had lost control of everything and my career and reputation were on the line, not to mention my relationship with my husband who didn’t see this coming.

How would I ever recover from this mess?

I would, although recovery eluded me several times. Following my diagnosis, I spent a full year in what felt like an extended visit to a deserted island: the isle of depression. It seemed like no one could possibly understand what I was feeling. I fought waves of anxiety each morning, and would calm myself down from my afternoon anxiety by collapsing on the couch in front of the television, tears soaking the oversized pillow which my head rested on.

I saw many doctors, so many that I can’t remember most of their names. My parents pushed for second, third, fourth opinions. Not because they didn’t trust the doctor’s opinions, but because we hadn’t figured out what would bring me back to my baseline. My normal. Finally, after seeing one of the top doctors in our area, a national specialist in the study of bipolar disorder, I was ready to follow his advice, the same medication recommendation that the previous few psychiatrists had been urging me to try.

Within two months I felt better than I had felt in an entire year. Slivers of my old personality were coming back. When I laughed, it felt genuine and amazing, better than it had felt even before I became sick. When several weeks had passed and I realized I hadn’t cried, I was shocked. The drug was actually working for me.

There would be two more hospitalizations in the years that followed, only because I had taken myself off my medication during pregnancy to protect my kids. When my daughter was only 8 months old, I decided I was ready to tell my story in order to help other women who might think they couldn’t have a family because of their mental illness. I launched my blog and began writing, but kept my identity a secret because I feared the repercussions of the stigma associated with mental illness.

I kept writing and sharing my experience as a mom raising two small kids while at the same time managing my bipolar disorder and over the next year and a half, I realized that keeping my identity a secret was only adding to the stigma surrounding mental illness. It was a part of my life and I wanted to show society that I’m a real person with real emotions and I believe that people who live with mental illness should be treated like any other person living with any other life-long disease. We didn’t ask for these conditions we were dealt, and the last thing we need is for society to look the other way when we’re suffering and need support to find recovery.

I was no longer ashamed.

And so in April of 2013, I announced on my blog that I was “ready to not be anonymous anymore,” and I took a brave stand against stigma. The support that poured in from my family and friends, and people I didn’t even know but who had read my post, was overwhelming. The words of gratitude for sharing my story so courageously were like fuel to me, as I kept writing about my experiences and connecting with people who appreciated my transparency.

Six months ago I launched a project and couldn’t have imagined the response it has generated. This Is My Brave is a live theater production where people from the community will take turns at the microphone to share their story on stage via personal essays, original music and slam poetry. This Is My Brave is more than just a one-time performance. We have become a platform and a community for people living with mental illness to speak out in an effort to end the stigma associated with brain illnesses.

Our mission is to ignite and actively promote―through actions and social media― a positive, supportive national conversation about mental illness for those who live with, or love someone who lives with, a brain illness. Through the sharing of stories and experiences of those in recovery, we expect to provide a sense of community and hope; encouraging others to share their stories. We believe that each time one of us talks openly about living with mental illness, we create another crack which helps to break down the stigma. We’re currently in the process of converting to a 501(c)3 non-profit organization and have been actively planning the pursuit of our mission beyond the debut of This Is My Brave in Arlington on May 18th.

It’s time we bring mental health issues into the spotlight because they’ve been in the dark too long. Please visit www.thisismybrave.com to learn more about the show. Auditions are currently being scheduled (www.thisismybrave.com/auditions) and tickets to attend the show are on sale now at EventBrite.com.

Follow the show on Facebook, Twitter and Instagram for all the latest news!

The Year I Learned to Jump

Photo Credit: Jimbo N via Compfight cc

“ALWAYS DO WHAT YOU ARE AFRAID TO DO.” - Ralph Waldo Emerson

Even in the midst of my intense wrestling match with bipolar disorder, right smack in the middle of the chaos of a frazzled mind and rattled sense of self-worth, I somehow knew one day I’d take the type of jump where there's no looking back once you launch yourself into the air.

I knew I’d face my fear.

Today, in these moments when I type here in my makeshift office and upload my words to this space which has become my launching pad for jumping off my cliff of fear, I’m opening up. Putting it all out there, no longer the only one bearing the weight the vivid flashbacks from the brunt of my struggle. I say not the only one because inevitably after I hit publish someone will respond with a “me too."

As 2013 comes to a close, I’m in the thrilling moments, body tingling from the pull of gravity after the big leap. The seconds are precious and they’re swiftly racing by like seconds on the New Year’s count-down clock, but I’m not bracing for the impact. Instead, I’m preparing to feel my toes slice through the surface of the water. {I prefer to jump in feet-first.}

Because in my dream about facing my fear, I’m on a huge cliff in Maui overlooking the deep blue ocean. Why not, right? It’s a dream.

I crave the feeling of weightlessness that comes from the adrenaline rush coursing through my body in mid-air. And I’m grabbing onto each and every one of those seconds as they fly by.

Resisting the urge to open up about my journey is almost impossible. At various times in my day-to-day activities, scenes from my first hospitalization in 2005 bubble to the surface of my memory. Or my second stint in the mental hospital. Or the third and fourth which sometimes confuse me with their shorter, more intense flashbacks. They were the times I was protecting my babies. Plus, they say the more you experience mania the less you remember. Makes sense to me now.

When mania took hold of my mind for the first time and spiraled out of control into psychosis, I spent three nights in a psych ward. Returning to the office the following Monday, I was able to gloss over my absence and say the doctor’s attributed my strange behavior to the lack of sleep and stress I was under at work. No one knew the real truth, although I’m sure there were plenty of rumors and assumptions flying while folks gathered around the water cooler on Monday morning.

I’m certain scenarios like the one I experienced happen every single day. Someone is absent from school or work for a few days or a few months and people start talking. And everything is hush, hush. Because societal norms tell us talking about mental illness isn’t the same as talking about someone who is battling cancer or severe asthma or a broken arm.

Well I have news for you: It's time we shatter those "norms."

And those of us who have fought these fights and who are still trudging through the pain and desperation and isolation that is mental illness could use the same support systems that other sick people receive.

More important to us than the flowers, cards, and meals you might send is simply your willingness to listen. To look us in the eyes and accept us for what we’ve been through, where we are right now, and what we will face each and every day and night for the rest of our lives.

Don’t be afraid to know our stories. We’re facing our fears, and we want you to, too.

Be open to us opening up. Give us hugs when we cry. Send us a laugh when you notice we’re down. If we’re too hyper, gently check in and ask if everything is on track with our treatment plan. It feels good to be acknowledged and cared for by those we love.

I have several close friends who do all these things and more and they make all the difference in the world. And of course my husband who is my better half, my voice of reason and the peace to the storm of what is inside me always knows when to step in with the right words to soothe me and keep me centered.

I will remember 2013 as the year I took the greatest leap I’ve ever taken. The year I jumped forward with sharing my words. The year I chose to only look back on the past in order to shift the future into better focus.

The year I did what I was afraid to do. And I haven’t even pierced the surface yet.

Ever been snorkeling, or better yet, scuba diving? {My husband is obsessed with snorkeling. He’s spent hours bobbing on the surface of the various tropical waters we’ve traveled to. I think it's cute.} He knows there are treasures down there. Which is why I’m so excited for my plunge into 2014 with This Is My Brave.

But first I’m looking forward to tomorrow. We're ringing in the New Year with my oldest girlfriends and their adorable kids and fun-loving husbands. It’s the 2nd annual #RomperRoomNYE2013 bash (follow along on Instagram!) and with 8 kiddos plus a 2-month old, the adults will be lucky to make it to the ball drop when we'll clink our champagne glasses with a toast to 2013 and what lies ahead in 2014.

My salute to this past year is composed of heartfelt gratitude for the support of This Is My Brave and our mission to encourage people to talk openly and often about mental health issues in their communities. The year ahead will no doubt be filled with learning experiences as I navigate unknown territories, but I am eager to grow and evolve, to bring these crucial conversations about mental illness into the spotlight.

Twenty-thirteen was the year I learned that facing my fears means enjoying the jump.

Why I Write

Photo Credit: dawolf- via Compfight cc

I write to show the world the invisible parts of me.

I write because people need to know what mental illness looks like. It looks like me. A young mom of two feisty preschoolers with a loving husband by her side.

I write because it’s too hard for him to talk about the four times his wife slept so little her brain was buzzing out of control and he had to sign the papers. Talk with police officers. Visit the psych ward. Hold down the fort while I got well.

I write because my kids are too young to understand what their mommy experienced before they were born, when they were little. And I want them to know all of it. I’m hopeful they’ll wrap their arms around me with pride and love when they read all I’ve written.

I write because I want to make a difference. I’m over the old-school philosophy of “some things are better left unsaid.”

Said who?

The truth is, when things go unsaid, that’s when tragedies happen.

I write because I’m almost 35 and no one ever knows how much time is left. I don’t want to regret not speaking out. I want my story heard.

I write because although I’ve found the courage to disclose my illness, so many others are still suffocated by their conditions. They may be feeling defeated by the mental illness they’re battling. And they’re not quite ready to talk or write.

But once they push past the anger, the fear, the disbelief and the shame that their illness dropped onto their shoulders, there will be plenty of time for a coming out party.

They’ll combine voices to put the power of unity behind the message, take a look around and communicate how good it feels to have this weight lifted off their shoulders. A weight that never should have grown there in the first place.

I write because I found my purpose. I write to help others find their brave.

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My book is now a Snippet! To read my short e-book entitled Find Your Brave {a manifesto}, click HERE to download Snippet in the Apple store. It’s the fun, new interactive way to read quick, engaging e-books.

The Stretch of This Is My Brave

Eight years ago this Christmas my life changed forever. I didn't realize it at the time, nor did my family and friends, but it was a beginning of a new chapter. After the shock of it all, there were tears, there was the grieving of the life I left behind, and there was a whole lot of learning ahead of us.

I've always been a writer, this I knew. But never did I think that writing would be the one thing that would help me recover from a mental illness. It would be through writing that I would find my brave.

My blog began as an anonymous online place for me to write about what it was like to be a mom living with bipolar disorder. I found my voice as a mental health advocate only six months ago and I’m now in the midst of catapulting stories of inspiration and hope from people who live with mental illness into the spotlight to change society’s perception of mental illness. It’s a little project called This Is My Brave.

“There is no greater agony than bearing an untold story inside of you.” - Maya Angelou

At thirty-four, I reached a point in my life where I didn’t want to regret not sharing my story. From vivid descriptions of my periods of extreme mania to the crushing reality of not being able to get out of bed during my year-long battle with depression and anxiety when I was first diagnosed, these stories were pacing my brain as if they were caged animals, desperate to be let out. And so my blog became a place where I released those memories of my story for whoever was on the other side of the Internet to read. My hope was that they found comfort in knowing they weren’t alone.

Talking about my illness and the struggles I had to overcome to get where I am today has not only been therapeutic, it’s also shown me that people are listening. People trust me to read their stories sent through emails which describe the pain and anguish they’re going through.

Then they thank me for my honesty and my ability to speak out for them since they’re not ready or able to:

"Thank you again for your blog and being brave enough to speak up about your experiences. I don't have many opportunities to talk about it in my daily life and interactions with other people.  It's just not something that comes up in casual conversation, but it is constantly on my mind." - S.H. via email

“Thank you for all that you do to advocate for mental illness. You are truly a brave and strong role model to me, as I'm nowhere near the level of acceptance or balance that you are. Anyway, I just wanted to send you my thanks and cheer you on.” - C.K. via email

"I'm in a unique position in that we recently moved here and I haven't known my friends here that long. Given all the misunderstandings out there about bipolar disorder, it is hard to know if they will get it or be afraid. I'm sure you understand. Hopefully, gradually, I can open up in a way that will educate them and not scare them. That's the challenge, isn't it? That's why we need a movement as you say!" - L.C. via email

Becoming an advocate and starting up this show is having an impact on people. People I haven't even met yet, but hope to someday. And it's not only people who find my blog via a random Google search who write to me, it's also friends of friends who stop me during my day-to-day activities to say, "Hey, what you're doing is really cool." And it's the texts and calls from my close friends who are telling me how proud they are of me.

I can't tell you how good that all makes me feel.

But this show isn't just about my story. This theater experience will be a wake-up call to everyone out there. It's a chance for those of us who know what it feels like to live with mental illness to open up and not be ashamed.

By coming together, we build strength by our numbers. And when we find the courage to share our stories, we propel a movement forward.

It starts with one person who is brave enough to share, who inspires others to share, which in turn inspires the world to change.

This past Sunday, our Kickstarter project for This Is My Brave reached its funding goal of $6,500. Because we recognize how important this show is to so many people, we've set a stretch goal of $10,000 and we now have 8 days left to reach it. With the additional funding we'll be able to extend our reach beyond just the one show. We'll be able to take our stories of hope and inspiration further. But we can only do it with your help.

Thank you so much to our incredible backers who have pledged and shared and supported us so graciously along this journey. With a week and a day left, we're hoping to reach further with the help of those who believe in this vision.

Click HERE to view our project on Kickstarter and share the info with friends on Facebook and Twitter. Thank you so much for your support!

My {In}voluntary Commitment and Why You Should Care

Photo Credit: yyellowbird via Compfight cc

Our bedroom door creaked slowly open at 6:35am this morning and my little man crawled under the covers next to me while my husband finished getting dressed for work. As I felt the chill of little toes brush my warm legs, I thought back to this same day, five years ago, when my mania had reached the breaking point.

I had begun to cross the threshold, going from highly manic to the inevitable psychosis, when my husband took matters into his own hands and called 911 for help.

What a stark comparison to today, I thought, as I reached into my sock drawer to fish out my psych ward socks. I pulled them on this morning as a way of honoring my past, while at the same time recognizing how far I’ve come and how I don’t ever want to go back.

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If your father were having a heart attack, or symptoms consistent with those of a heart attack, you would rush him to the hospital where he would receive treatment. If your child had a 104 fever and was gravely ill but refused to take any medicine, you would call your pediatrician who would tell you to rush the child to the Emergency Room where he would receive medical assistance.

But if someone you loved were experiencing a mental health crisis and needed to see a psychiatrist or be involuntarily committed to a psychiatric facility to receive treatment, you wouldn’t believe the obstacles you have to surpass in order to get them the care they need to get well.

I know, because my family and I plunged head first into these roadblocks in the U.S. mental healthcare system five years ago when I was hospitalized for postpartum psychosis after the birth of my first child in 2008. Writing about this experience was something I wanted to do in order to educate people about the policies surrounding access to mental health care in the state of Virginia. {The laws vary by state. A good resource with links to studies and comprehensive information is MentalIllnessPolicy.org.}

In researching my mental illness and the treatment I received during my hospitalization, I requested copies my medical records from the hospital. I’d like to take you back to the week of October 22nd, 2008, approximately four weeks after I had given birth to my son. Belly still swollen, breasts leaking milk, I lost touch with reality during the early hours of that cool fall morning, but remained silent about my growing sense that this would be my last day on earth.

I was terrified of being taken away from my baby even though there was a little voice in the far corner of my mind urging me to go. I just didn’t want to listen.

That morning my husband knew from my past two manic episodes that I needed to be taken to the hospital. He called his mom and sister to come over and help, as we had been through this before and he knew my erratic manic behavior would require more than one person assisting in the effort to get me ready to be transferred. His next call was to dial 911, where he explained to the dispatcher that I had a bipolar diagnosis, was off my meds because of having just had a baby, and was now rapidly deteriorating and we were in need of help to get me to the hospital. He then called my psychiatrist, leaving her a message to tell her what was going on. And lastly he called my parents in Florida to alert them as well.

I remember being on the phone with my Dad while sitting on a chair in the kitchen, talking to him on speaker phone while the two female police officers who had been dispatched to our house were standing right before me. He was pleading with me to go with them. I don’t recall much, other than being afraid. I don’t know exactly how much time passed, but eventually they were able to take me, in handcuffs, under a Temporary Detention Order (TDO), to our local hospital for an evaluation.

I was clearly manic to the point of psychotic. It was well documented in the detention order paperwork that I had reported hearing voices and seeing ghosts in the baby’s room. My husband had told the officers that I had only slept 3-4 hours a night for the four nights leading up to his call for help. His sleep estimates were correct - it had been the weekend of our son’s baptism and I was trying to prepare for out-of-town guests along with getting everything ready for the party we were hosting. On top of learning to care for our new baby and suppressing the mania that I had felt since the night he had been born, it all caught up to me.

The Temporary Detention Order allowed my husband to have me sent to the hospital for an assessment. My husband was my Petitioner - the person asking that I be involuntarily committed. We were led to an empty hospital room where I was handcuffed to the metal bars of the hospital bed. My husband stayed by my side the entire time. The nurses assessed me and it was determined that there was substantial likelihood that, as a result of my mental illness, in the near future I would suffer serious harm due to a lack of capacity to protect myself from harm. I refused all meds in the Emergency room and I met the criteria for involuntary admission to a psychiatric ward of the hospital, not to exceed a 30-day stay.

I was taken by police car, still handcuffed, to our local hospital’s geriatric psychiatric ward, the nearest facility with a bed available. By the time the bed had become available, it was late at night and I remember being terrified upon entering the facility because of the Halloween decorations festively decorating the glass doors which were pulled open for me. My throat closed and I struggled to breathe, leaning all my weight back, attempting to keep them from guiding me in. They eventually coaxed me in and a young attendant began working with me to get me through the intake process. I remember her arms, covered with tattoos. Her name was Jenny.

They tried to give me drugs to force me to sleep, but my mania was so rampant and I continued to refuse oral medication, so I was given an injection to tranquilize me and my body succumbed to the rest it so desperately needed. I woke groggy, and still very ill.

The Temporary Detention Order meant I could be held involuntarily for one to five days, until a commitment hearing could be held. I was admitted the night of October 22nd, and my commitment hearing was scheduled for 9am on the 24th.

After only thirty-six hours of psychiatric care, I was still extremely sick and my mania was apparent to everyone close to me. But the chemical imbalance that was still working itself back to balanced with the help of the meds and forced rest, wasn’t severe enough to present me as a threat to myself or others during the trial, and despite my family’s strong arguments that I was not well enough to go home and care for myself, let alone a newborn, the judge still deemed me well enough to not be held against my will.

I was free to go home. Case dismissed.

My father spoke with the judge immediately following the trial’s conclusion. He was shocked and couldn’t believe the judge was going to send me home in the condition I was in. My father then asked if they (my family) were able to convince me to stay in the hospital, voluntarily, would I be able to stay?

The judge informed him that yes, I would of course be able to stay on a voluntary basis, but on the same token, I’d be able to sign myself out at any time.

This news was plenty good enough for my family and they immediately began encouraging me to stay and rest, so that I’d be able to return to my newborn baby in a much clearer state of mind. They knew that with just a few more days of treatment and solid sleep, I’d be in a significantly better place to where I could continue to see my outside psychiatrist and work on making a full recovery.

Fortunately, I was well enough to rationalize their concern for me and that was all it took to convince me to sign myself in. I stayed for three more days. My husband and dad came to visit me every day to check on my progress. They used my somewhat still disoriented state to their advantage as they were able to remind me each day that “we all needed to be in agreement that it was the right time for me to go home,” and I was too fragile mentally to process what had happened in the hearing so I followed their lead. I had signed myself in to stay and could leave when I was ready, but I didn’t really comprehend it all at the time.

I called home daily to check on my baby and asked them to bring pictures to the hospital. He changed so much in that week that I missed. His wispy brown hair on top fell out, so he had a bald head with only hair on the sides and around to the back. I cried at a picture they brought me of him smiling on his back laying on a blue and green striped baby blanket. Desperate to get back to my son, I eagerly took my meds each day and night, and did my best to be a model patient.

I signed myself out of the hospital on the 27th, after a 5-day stay, and walked into the kitchen of my house where my mom was stirring a pot of homemade chicken noodle soup cooking on the stove. I made my son a bottle of formula and sat on the couch to learn the art of bottle feeding him after having spent a month perfecting breastfeeding. I will never forget that moment. While feeding him and gazing into his eyes I silently vowed that I would do everything in my power to stay healthy for him. I never wanted to be taken away from him again.

Some people might say that involuntary commitment laws take away a person’s constitutional right to freedom. I completely disagree.

My family sought help for me because they knew I was so severely ill. The system initially determined I was a threat to myself, but the judge at the commitment hearing determined that was no longer the case. Situations like this happen all the time due to the current state of our mental health system and unfortunately, these holes in the system are what contribute to tragedies like Virginia Tech, Sandy Hook or the Navy Yard shootings. It’s the subjective “threat to themselves or others” which is determined by someone who has never met the mentally ill person, which is what needs to change.

People who are aware of family or friends who have mental health issues (and we all know someone given the statistic of 1 in 4 Americans living with a mental illness) need to be more proactive when they sense a change in someone’s behavior. By paying attention to the fragile mental states of people within our own environments, we will be able to push for help before it’s too late. The mental health laws need to be reviewed and modified to permit family and friends to have the ability to have people in trouble involuntarily committed for longer periods of time, so they are better able to make bigger strides towards recovery during the time in which they are under the hospital's psychiatric care. Until this done, we will continue to see more tragedies.

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On this fifth anniversary of my TDO and subsequent voluntary psychiatric commitment, I’m able to smile at my son’s insistence on dressing up as a ghost for Halloween. Five years ago I was not taking my medication and therefore went through hell, reportedly saw ghosts, and thought the world was coming to an end. But today I’m cutting eye holes out of a white sheet to dress my little man up on the last day of this month. A costume which serves as a gentle reminder of my past, while allowing me to appreciate the invisible challenges which inevitably lie ahead.

Brave Because I Want To See Society Change

I learned of yesterday’s shooting here in Washington, DC, via the news pouring into my Twitter feed about the woman who had crashed her car into the gate surrounding the White House. There was speculation that a child was in the car with her at the time. There was also speculation that she suffered from mental illness.

Then she was shot by police and died soon after. The baby, thankfully, was unharmed in the ordeal and is now in the custody of child protective services.

I am so utterly heartbroken for this woman, her child, her family and friends and our society.

This needs to stop.

But unfortunately, until our country stops blaming people with mental illness for their conditions and starts providing the mental health services they need to get well, incidents like what happened yesterday will continue to occur.

We need to come together as a society to talk openly about mental health issues. If you notice someone exhibiting the signs and symptoms of a mental illness, do what you can to help them get the treatment they need. I guarantee you they are too sick to realize they need help.

We need to stop hiding our mental illnesses, because by hiding we are adding to the stigma.

Earlier this year I made the choice to go public with the fact that I live with Type 1 Bipolar Disorder. That I’ve been hospitalized a total of four times for mania, once was postpartum psychosis after the birth of my first child in 2008. That I once was afraid and ashamed to speak openly about my illness.

Today, I am neither afraid nor ashamed of my illness. I am proud to talk openly about my experiences because my openness helps others. They've told me so.

When we come together to share our stories, we propel a movement forward. A movement to shift the way people view the mentally ill. A movement to bring desperately needed changes to the state of mental health services in our country. A movement to stop the loss of innocent lives - both the mentally ill themselves and the people they harm when they are sick.

You see, yesterday’s news could have been me. I suffer from mental illness. But unlike Miriam Carey, I received proper treatment.

And with proper diagnosis and continuous treatment, people with mental illness can lead perfectly productive lives. They can be {and ARE} valuable members of society when they have the support and services they need to get well and stay well.

I don’t like to think about what could have happened if my husband hadn’t reached out for help. But the reality is that whenever a story like this hits the news and the person involved is thought to have “a history of mental illness,” I am brought right back to the torment and the excruciating emotional pain of what we went through as a family the times I was sick.

We need to change the public's misconceptions about mental illness because when people get treatment, lives can be saved.

I recently wrote a manifesto on my experience living with bipolar disorder. It's called Find Your Brave and I hope you'll take a moment to download it here and share. It's part of my effort to encourage people to stop hiding and seek support because we're so much stronger when we come together.

Let’s come together and show the world This Is My Brave.

What I Want You To Know About Postpartum Psychosis

Five years ago today my little man was born.

As for any first-time mom, the excitement and energy of the rush to the hospital to meet him is a bit of a blur, especially given the five years that have flooded my memory since then. Sure, we had the same fears and concerns as any new parents: is he sleeping and eating enough? Are we using the right baby products? When will his umbilical cord heal? Are we doing enough tummy time? But for us, the beginning of our story is quite different than that of most new families starting out.

Because right after he turned four weeks old, I had to be hospitalized for postpartum psychosis.

I knew I was experiencing hypomania from the time that he was placed in my arms around four a.m. the morning after he was born. He tried nursing for the first time and the physical exhaustion and emotional release of having just given birth started to set in. We sent him to the nursery so that I could try to catch up on sleep, but with the nurses checking my vitals every hour due to the C-section, sleep was nearly impossible.

Some people may wonder why I hid my symptoms from the people who could help me. The doctors and nurses who saw me when they came to check on the baby while we were still in the hospital never noticed that I was struggling. My therapist, who saw me when I was three weeks post-partum didn’t detect anything unusual. My husband and my parents could sense something was different about me, but we were all so caught up in the new baby that we pushed my mental health issues to the side and put the needs of the baby first.

I love my son with everything in me, but I know from all that I’ve been through over the past eight years living with bipolar disorder that I need to put my mental health first in order to be the best mother I can for him and his sister.

But in the first few weeks of his life, I didn’t know this. I was just a new mom. Trying my hardest to not screw up. And at the time I thought that meant staying off medication to protect my baby.

I was absolutely determined to breastfeed him. I put so much pressure on myself to make it work that the first week I was barely producing any milk because I was so stressed out and the internal fear that my body wasn’t going to be able to actually make food for my baby was doing just that: stunting my ability to lactate.

We did finally figure the whole breastfeeding thing out, me and Owen. And I nursed him for the first four weeks until I was no longer able to hide the fact that I was losing touch with reality.

I felt as though I was invincible and hardly needed to eat or sleep. The less I slept, the more energy I seemed to have. I never napped when the baby napped because I’d always find something to do around the house that was of course more important than catching up on sleep.

Everything around me had a certain sparkle to it. It was as if I were living in a dream world where everything was amplified and so vivid that I had to stay awake to soak it all in. There was no pain, only the soothing sounds of my baby cooing or crying softly before I picked him up.

It was all very surreal. But when hypomania turns into mania, and mania escalates to psychosis, things can go very wrong.

I am so thankful that my husband realized what was happening and knew exactly what to do in order to fix me.

As hard as it was for him to call 911 and have the police and EMT’s take me to the hospital, he knew that I needed to be separated from my baby for a week in order to get well.

And as much as I mourn the week that I lost with my son, I’m grateful for what I learned and how sharing my story has the potential to help other moms and families out there.

Not enough is shared about postpartum psychosis. Even though it is not nearly as common as postpartum depression, doctors still should discuss the potential chances of the occurrence, specifically in patients like me who had a previous bipolar disorder diagnosis.  Society doesn’t understand it and therefore, families aren’t on the lookout for symptoms in new moms. And I’d like to change that.

Women who experience postpartum psychosis are just normal moms who unfortunately have a chemical imbalance in their brains. Some of these women have thoughts of harming their children, and some of them act on those violent thoughts. I was one of the lucky ones who didn't have those intrusive thoughts, but even if I did - that doesn't make me a monster, as my friend Robin wrote on her blog recently.

I’m just a mom, with a 5-year old little man, who wants to prove to the world that our struggles don’t define us. They only provide us with opportunities to make a difference in the world. I’m beginning to work on explaining this to him every chance I get.

I’m loving watching my son grow into a smart, funny, caring, determined and stubborn little guy who has stolen my heart with his hugs and his smile. I’m still in complete awe of the fact that he grew inside of my belly, remembering the pressure of his little feet apparent from the outside. Bringing him into our lives was a miracle and we couldn’t imagine life any other way.

The other day I asked him what he thought it would feel like to turn five. “I’ll be all grown up! A big kid!” was his response. So much like me, he’s eager to make his way in the world, try new things and move mountains. I’m trying my best to just let him be little, to enjoy the carefree afternoons at the playground or the library. To linger over snacktime at home with him while his sister is still napping. And to savor every small moment we have together like our morning hugs and bedtime stories.

Five years have gone by so quickly but I’m not sad about them passing. The collection of countless precious memories which I’ve tattooed onto the inside of my mind are what I carry with me in my heart from the past.

I’m eager to see what the years ahead hold. Both for him, and for his mom who will always be looking on with pride.