Our Love Survives Mental Illness

View More: http://staceywindsor.pass.us/marshall_familyPhoto Credit: Stacey Windsor Photography

When I got married at the age of twenty-four, I never imagined I’d be looking back at our past ten years of marriage with the realization that our love has survived mental illness.

But the reality of mental illness is that it doesn't discriminate. Like cancer, it strikes without warning. Like cancer, it’s life-changing. Like cancer, it tests the strength of the important relationships in your world. It's ruthless and heartless, and at times I felt as though I were drowning and I'd never come up for air.

I met my husband when I was nineteen years old. We dated throughout college, even though we attended universities two hours apart. Long-distance wasn’t a piece of cake, but it was doable. Both of us had cars, and the drive wasn’t that bad. Each weekend one would drive to be with the other and when we graduated, we couldn’t wait to live in the same city. It wasn’t long before we were engaged and ready to make it official after having been a couple for four years.

He proposed early one morning, kneeling by my bedside at six in the morning, while I tried to force myself to wake up so I could memorize what he said, the look in his eyes, the magic of the moment. He whisked me away to the Bahamas for the weekend, my fairytale proposal. I remembered thinking at the time, “What did I do to deserve a man like this?” It all just seemed too good to be true.

He chose a beautiful, smart, driven, fun-loving fiance as the woman he wanted to spend the rest of his life with. He chose me. He didn’t choose mental illness.

He never signed up for this.

Our wedding was perfection, from the good-luck rain which fell as my dad and I ran from our limo into the church where he was waiting for me at the altar, to the dinner and dancing with our friends and family to the luxury hotel room where we peeled off our wedding attire at the end of the night. I took mental pictures throughout the night so as not to forget any detail. It was everything I had dreamed it would be. Only better.

I never imagined two years later I’d be blindsided with a manic episode so severe that four months later I’d be forced to quit the career I had worked tirelessly to develop.

Through it all, my husband’s love never wavered. Even though what happened to me terrified him more than it did me - in the moment I couldn’t comprehend what was going on - he didn’t flinch. Instead, he took control of the situation and made the call for help.

I can still recall the authority in his voice, the strength in his embrace as he tried to coax me to the car so he could drive me to the hospital, and the way he spoke with the EMT’s and police officers with respect and appreciation for their help as they arrived at our house to take me to the psych ward.

He’s been by my side, holding my hand, each and every time mania has overtaken my mind. His arms never tired from hugging me close, his thumbs wiped countless tears from my cheeks so that he could kiss me gently to encourage me to keep my chin up. We took things one day at a time and eventually I found my path to recovery.

But I don’t know how I would have found my way if he wouldn’t have been there to walk with me.

My brother has said before that he couldn't have hand-picked a better husband for me. I couldn't agree more. I am the luckiest girl in the world to have ended up with such a supportive, loving, dedicated man.

“In sickness and in health…” hit us a little sooner than we had anticipated. On this Valentine’s Day, I celebrate how my husband was able to be the light during my storm. Our love was tested and thankfully we made it through, and continue to weather the storm, with flying colors.

 Happy Valentine's Day, honey. I love you with all my heart. xoxo

Letting Go of the Secret

1638001945_6d2fc78977Photo Credit: notsogoodphotography via Compfight cc

Living a life with an ever-present fear of revealing a certain secret part of yourself isn’t truly living. I know, because I’ve been there. Being caught up in an inauthentic version of myself wasn’t the way I wanted to live my life. And so I made some changes. The results were incredible.

At twenty-six years old, newly married and at the peak of my career as an agency recruiter, I was hit with mania. It came without warning, and felt exactly the same as slipping on black ice and landing flat on my back, the wind sucked out of my lungs and a searing pain pulsing through my bones. I was terrified of what was happening in my brain. I had lost control of everything and my career and reputation were on the line, not to mention my relationship with my husband who didn’t see this coming.

How would I ever recover from this mess?

I would, although recovery eluded me several times. Following my diagnosis, I spent a full year in what felt like an extended visit to a deserted island: the isle of depression. It seemed like no one could possibly understand what I was feeling. I fought waves of anxiety each morning, and would calm myself down from my afternoon anxiety by collapsing on the couch in front of the television, tears soaking the oversized pillow which my head rested on.

I saw many doctors, so many that I can’t remember most of their names. My parents pushed for second, third, fourth opinions. Not because they didn’t trust the doctor’s opinions, but because we hadn’t figured out what would bring me back to my baseline. My normal. Finally, after seeing one of the top doctors in our area, a national specialist in the study of bipolar disorder, I was ready to follow his advice, the same medication recommendation that the previous few psychiatrists had been urging me to try.

Within two months I felt better than I had felt in an entire year. Slivers of my old personality were coming back. When I laughed, it felt genuine and amazing, better than it had felt even before I became sick. When several weeks had passed and I realized I hadn’t cried, I was shocked. The drug was actually working for me.

There would be two more hospitalizations in the years that followed, only because I had taken myself off my medication during pregnancy to protect my kids. When my daughter was only 8 months old, I decided I was ready to tell my story in order to help other women who might think they couldn’t have a family because of their mental illness. I launched my blog and began writing, but kept my identity a secret because I feared the repercussions of the stigma associated with mental illness.

I kept writing and sharing my experience as a mom raising two small kids while at the same time managing my bipolar disorder and over the next year and a half, I realized that keeping my identity a secret was only adding to the stigma surrounding mental illness. It was a part of my life and I wanted to show society that I’m a real person with real emotions and I believe that people who live with mental illness should be treated like any other person living with any other life-long disease. We didn’t ask for these conditions we were dealt, and the last thing we need is for society to look the other way when we’re suffering and need support to find recovery.

I was no longer ashamed.

And so in April of 2013, I announced on my blog that I was “ready to not be anonymous anymore,” and I took a brave stand against stigma. The support that poured in from my family and friends, and people I didn’t even know but who had read my post, was overwhelming. The words of gratitude for sharing my story so courageously were like fuel to me, as I kept writing about my experiences and connecting with people who appreciated my transparency.

Six months ago I launched a project and couldn’t have imagined the response it has generated. This Is My Brave is a live theater production where people from the community will take turns at the microphone to share their story on stage via personal essays, original music and slam poetry. This Is My Brave is more than just a one-time performance. We have become a platform and a community for people living with mental illness to speak out in an effort to end the stigma associated with brain illnesses.

Our mission is to ignite and actively promote―through actions and social media― a positive, supportive national conversation about mental illness for those who live with, or love someone who lives with, a brain illness. Through the sharing of stories and experiences of those in recovery, we expect to provide a sense of community and hope; encouraging others to share their stories. We believe that each time one of us talks openly about living with mental illness, we create another crack which helps to break down the stigma. We’re currently in the process of converting to a 501(c)3 non-profit organization and have been actively planning the pursuit of our mission beyond the debut of This Is My Brave in Arlington on May 18th.

It’s time we bring mental health issues into the spotlight because they’ve been in the dark too long. Please visit www.thisismybrave.com to learn more about the show. Auditions are currently being scheduled (www.thisismybrave.com/auditions) and tickets to attend the show are on sale now at EventBrite.com.

Follow the show on Facebook, Twitter and Instagram for all the latest news!

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Finding Focus

Finding-focus

She woke up shouting “Mommy!” at the top of her lungs and the shrill of her voice jolted me out of my deep sleep. Having stayed up past midnight last night didn’t bode well for the day ahead of me. I stumble sleepily into her room and turn off her white noise machine. After pulling on a hoodie and slipping on some warm socks, she reaches out her arms and asks me to carry her downstairs. I oblige, noting that in another year she’ll be emerging from her room by herself in the morning, on her own time, like her brother who is still curled up in his bed sleeping but likely not for much longer.

Breakfast is served, it’s oatmeal again and they both love choosing their own packet from the variety box of flavors. Milk added, to cool it down, I sip my hot coffee as their little voices chatter over their bowls. I mentally start to add up all the things I need to get done today. Worry seeps in but I refuse to let anxiety take over. It will get done eventually. It’s not the end of the world.

Once their bellies are full, my littles snuggle up on the couch under blankets, watching a favorite show, while I attempt to cross items off my list.

I have a lot going on these days. So much that I often hear, “I don’t know how you do it all. You must be so busy!” It’s true I constantly feel pulled in a hundred different directions, I have trouble saying no, and I stress myself out continuously throughout the day thinking about impending deadlines and the like. But I wouldn’t change my life for anything.

I’m learning to take things one step at a time. I’m working on staying focused on the task in front of me because in reality nothing matters more than the moment we’re living in; life does not come with the guarantee of tomorrow. I’m trying my best to practice all these things, and I catch myself smiling in the moments when I get it right.

This morning just happened to be one of those days when I felt like I had so much to get done that I couldn’t figure out where to start. I begin one task only to be distracted by my daughter asking for milk or my son asking me to play a game. It was no use. I gave up on attempting anything other than sending out a few emails.

Instead I closed my laptop, surrending to the morning. Scooping up my little girl, who was pulling at my sweatpants, begging for attention, I found focus. We rubbed noses, our silly little way of saying ‘I love you’ and she pulled me in tight for a big bear hug. As she pulled away, she stared into my eyes and asked me a simple question.

“There. Do you feel bedder, Mommy?” her head tilted to the side, a sweet smile dancing across her perfect lips.

It was all I needed to put things into perspective. Yes, I felt much better, I told her. Now, how about a snack?

Snow and writing

Snow-and-Writing This week has been full of snow and writing. I haven't posted anything to the blog this week because I've been busy writing for Postpartum Progress since I'm a member of the Warrior Mom Editorial Team. If you haven't already seen my posts via my social media promos, I'd love for you to check them out. {Postpartum Psychosis Doesn't Equal Failing as a Mom & Psychosis During Pregnancy and What It Taught Me are the titles of my two posts.} When I hear the song from Frozen it makes me think of that time in my life when I was having babies and not taking medication in order to protect them.

Seems so long ago, but it hasn't even been four years since my last episode. Back then I worked to hide what I had been going through. I've matured since then and I now know - from the tweets, comments and emails I receive from people who have read my words - that I made the right decision. Speaking out helps so many people. I'll never know how many, but my heart is content with my decision to become an advocate.

It's been a long week here with Monday being MLK Day and the little man off from school, then the snowstorm on Tuesday which led to school being cancelled for the rest of the week. I've been trying not to tear all my hair out from the "I'm-at-the-end-of-my-rope" feeling due to having to entertain a 3 and 5-yr old for four days straight. We're all getting on each other's nerves from being cooped up in the house all week. I say cooped up because for the most part I despise winter and only go out in negative wind chill weather when absolutely necessary.

Like for my therapist appointment yesterday. Couldn't ask for better timing.

I've been working on a ton of stuff for the show in May. Hard to believe it's only four months until we take the stage. Audition slots are starting to fill up and my Association Producer Anne Marie and I are thrilled to see everything coming together. If you know anyone you you think would be fabulous for the show - I'm talking creative, funny, inspirational, energetic - please have them sign up for a spot before they're gone.

I recently accepted a new writing assignment for an organization doing a tremendous amount of inspirational, educational, critical work surrounding mental health awareness. I'm honored to have been approached by them and cannot wait to share my first post with you. It's a once-a-month gig, which is definitely manageable and plus, it's an opportunity I couldn't turn down. {Sorry I broke my promise, Maria - but this is worth it!}

So yeah, a lot going on. But if I've learned anything over these last few months it's that the work eventually gets done. When the kids are calling for me to get down on the carpet and play "picnic" or board games with them, I listen. I close the laptop and grab hold of the quality time. Or when exhaustion sets in, we snuggle up on the couch and watch a movie together. Life is good. Better than good, actually. It's pretty damn amazing. (Including the occasional teachable parenting moment, which I wrote about for WhatToExpect.com recently.)

   "If you are always trying to be amazing, you will never know how amazing you can be."                                                             - Maya Angelou

Keep Climbing

Keep-Climbing

Lately I’ve been feeling a bit overwhelmed. My little man and I both had the flu last weekend, and I spent two straight days in bed, fighting off the virus that had crept into my bones. I got down on myself because the two goals I had set for myself in January - exercise every day and write 500 words a day - both went untouched for a full forty-eight hours.

Even when I started feeling better, I felt paralyzed by the growing pile of tasks I needed to accomplish this week. Which led to stalling. And self-pity. And more procrastinating.

I am just stuck, I thought. I know there’s a way to get back on track. But how?

Not knowing whether or not it would work, but thinking it was at least worth a shot, I gave myself the day off. After dropping off my son at preschool for the afternoon, V and I had an impromptu Mommy/Daughter day.

Our first stop was the mall, where we returned a Christmas gift I had given my husband at The Gap. She had a ball hiding in the racks causing her mama anxiety, quickly indicating how much of a challenge shopping with little Miss Independent was going to be. So I decided to head back towards home to pick a different activity. But not before snapping a photo of my big girl and her new friend.

new-friend{Because this isn't the least bit creepy. That's her avocado from lunch on her sleeve.}

Every Mommy/Daughter day needs a special treat. We stopped in at Starbucks for a little coffee time. Caffeine and sugar are always good for igniting my writer’s voice. My mini-me picked a chocolate cake pop which pleased me since I know I can usually count on her to share at least one tiny bite. Her brother? Never.

From there we headed to the playground. As we drove in to the parking lot, I was relieved to find it empty, not wanting to have to make small talk with other moms I didn’t know. I just wanted to soak up the precious minutes alone with my little girl. Greedy for our one-on-one time, new territory as of recently. I've stopped fighting her on afternoon naps, reminding myself that her brother gave his up around this age.

She wanted to do everything. I watched, mostly, cheering her on from the sidelines while sipping my latte, admiring my baby’s fierce determination and squeals of joy in the little pleasures like riding the springy elephant to being pushed on the swing, her fine blonde wisps blowing in the chilly breeze.

My playground bunny asked for help scaling the rock wall. Putting my coffee down on the bench, but not wanting to give her more assistance than she actually needed, I placed a hand on her lower back so she could feel my presence. And instead of physically helping her with the climb, I used words to motivate her.

“Find your footing,” I said, as her toes tapped the ledges to find her next step forward.

“I can’t!!” she cried, ready to give up before she had even climbed a foot.

“Don’t say ‘I can’t!’” I chided gently. “You can do it. I know you can.” I reassured her. She wanted to keep going. It’s not like my little girl to give up on something that easily. I knew she was just testing me, making sure I was there to support her.

The climb was slow. She’d ascend a step, but would suddenly seem to get stuck, not knowing her next move.

Stuck. Like me.

“Keep looking ahead, Sweetie.” I reminded her. Her tiny fingers reached up to the grip above her head, legs stretched straight until she found her next step.

That’s it. That’s all my daughter needed and a few more reaches and steps and she was at the top of the mountain doing a happy little dance. Proud mama below, cheering.

We wrapped up our afternoon outing with a trip to the library before collecting her brother at preschool carline where she promptly fell asleep. In that moment I sat in the car waiting for my little boy to emerge from school, full of gratitude for a day spent hand-in-hand with my second child who reminded me how to get unstuck.

Find your footing. Don’t say ‘I can’t.’ Keep looking ahead.

My mantras for the rest of this year. Thanks for the tips, baby girl. Let's keep on climbing.

 

Less and More

less-and-more Sitting here, on the barstool at our kitchen island - my new favorite writing spot once the kids are in bed and Ben has kissed me goodnight before heading upstairs himself - the house is quiet except for the hum and rhythmic click of zippers from laundry being tossed around in the dryer.

I'm snacking on a bowl of the granola bars I made with the kids today. It's in a bowl because they never set and are all crumbly so I have to eat it with a spoon. I choose a kiddie spoon out of the drawer, realizing in that moment that we'll soon be getting rid of all the kiddie cutlery. At three and five my kids no longer want to use a tiny plastic fork or spoon, protesting when I still serve them cereal with the brightly colored utensils.

Practically every night I worry that I'm failing them as a mom. Why is it I always play back the mistakes I made during the day, rather than recall the beautiful moments we had playing and laughing and snuggling together? I wonder if I'm too focused on my own personal goals and feel guilty I don't consciously set goals as a mom.

I want to make significant changes in this new year, this fresh start. I want to check email less, and bake with my kids more. I want to complain less and drink in the giggles more. I want to not stress out over small things and hug my family and friends more. I want to be less critical and be more appreciative. I want to not freak out when the kids are simply being kids, and instead smile and file the memory of how they are at these ages away so I never forget.

Every day is a new chance to try again. Another day to try my best at being the absolute best mom I can be for my kids.

Planning the Future and Enjoying the Journey

planning-future-enjoying-journeyPhoto Credit: Johan J.Ingles-Le Nobel via Compfight cc

It can be almost dizzying to have to plan for what's ahead, but yet keep your focus at the same time on the daily details that actually may make the future happen.

There is so much written lately about staying “in the moment” and how we need to remember to cherish the everyday little events that happen to us rather than spend all our time anticipating the next big thing: graduating college, getting married, buying a house, having kids, etc, etc. I even wrote recently about how the swift tick of the clock changed me when reflecting on my daughter’s hospitalization for Kawasaki disease.

I agree wholeheartedly with this concept of fully enjoying the time in our lives that falls in-between those major life events. But things also change when you’re planting seeds. You have to set long-term goals. Write strategic plans. Manage expectations of your backers.

Because success is on the line.

I’m starting to think like a real entrepreneur and I’m loving it.

So I write big goals. I check with experts in their respected fields. I make connection after connection.

There is a chance things won’t work out. There is a chance we could fail. But the only way to prove that chance wrong is to plan. To read. To talk it through. To set the bar high. To take the leap of faith because I believe in this project and its mission.

You know how I can tell This Is My Brave is a critically needed movement? Because people tell me every day.

And it’s the passion in their voice, the stories they share with me, the emotions they trust me with which whisper to me, “Keep going!” and "What you're doing is so important!" when my thoughts run away from me and threaten to bruise my confidence.

Every time I see an email pop up in my inbox from someone saying “I stumbled upon your blog and wanted to thank you,” my heart smiles. Because I’ve touched someone to the point that they took the time to write me an email and in it they tell me about how mental illness changed their life. I can’t even tell you how much this means to me.

Maybe it was a sibling, a child, a best friend, or a parent. Usually it is the person who is writing. Mental illness affected their life in a major way and they are relieved to find another brave soul who is open to talking about their experience. And they just happened to choose me.

Friends, the reason I created This Is My Brave is to encourage conversations - like the ones that happen in my inbox - to occur in communities everywhere. I want people to not have to be afraid of talking with their families, their friends, their neighbors, their religious leaders, about what it’s like to live with mental illness. To not be afraid to ask for help. The more people open up, the bigger the impact and the more lives we’ll save.

I want people to be helped by the sharing of personal stories. And we’re doing it in an energetic, eclectic way. The essays, songs, and poetic readings you’ll experience at This Is My Brave will leave you with a new, more positive view on mental illness. There are benefits to living with some of these conditions, believe it or not. Creativity, for one. Compassion, resilience, a fierce will to figure out what will bring relief are some of the others. I know there are more, too.

We want to show you what we’re capable of. In four short months we take the stage. I’ve been cognizant of the journey and have been diligently keeping my eye on the future at the same time.

Best of both worlds, for sure.

PS. I’ve been nominated for the WEGO Health Rookie of the Year Health Activist Award! I’d be so grateful if you’d take the time to endorse me via my Nominee Directory page. It only takes a minute - simply click the link and then select the purple thumbs up button beneath my profile picture. You can endorse me once a day until February 1st when they vote. {The 3 nominees with the highest number of endorsements will be named finalists!} Thank you so much!

The Year I Learned to Jump

Year-Learned-JumpPhoto Credit: Jimbo N via Compfight cc

“ALWAYS DO WHAT YOU ARE AFRAID TO DO.” - Ralph Waldo Emerson

Even in the midst of my intense wrestling match with bipolar disorder, right smack in the middle of the chaos of a frazzled mind and rattled sense of self-worth, I somehow knew one day I’d take the type of jump where there's no looking back once you launch yourself into the air.

I knew I’d face my fear.

Today, in these moments when I type here in my makeshift office and upload my words to this space which has become my launching pad for jumping off my cliff of fear, I’m opening up. Putting it all out there, no longer the only one bearing the weight the vivid flashbacks from the brunt of my struggle. I say not the only one because inevitably after I hit publish someone will respond with a “me too."

As 2013 comes to a close, I’m in the thrilling moments, body tingling from the pull of gravity after the big leap. The seconds are precious and they’re swiftly racing by like seconds on the New Year’s count-down clock, but I’m not bracing for the impact. Instead, I’m preparing to feel my toes slice through the surface of the water. {I prefer to jump in feet-first.}

Because in my dream about facing my fear, I’m on a huge cliff in Maui overlooking the deep blue ocean. Why not, right? It’s a dream.

I crave the feeling of weightlessness that comes from the adrenaline rush coursing through my body in mid-air. And I’m grabbing onto each and every one of those seconds as they fly by.

 

Resisting the urge to open up about my journey is almost impossible. At various times in my day-to-day activities, scenes from my first hospitalization in 2005 bubble to the surface of my memory. Or my second stint in the mental hospital. Or the third and fourth which sometimes confuse me with their shorter, more intense flashbacks. They were the times I was protecting my babies. Plus, they say the more you experience mania the less you remember. Makes sense to me now.

When mania took hold of my mind for the first time and spiraled out of control into psychosis, I spent three nights in a psych ward. Returning to the office the following Monday, I was able to gloss over my absence and say the doctor’s attributed my strange behavior to the lack of sleep and stress I was under at work. No one knew the real truth, although I’m sure there were plenty of rumors and assumptions flying while folks gathered around the water cooler on Monday morning.

I’m certain scenarios like the one I experienced happen every single day. Someone is absent from school or work for a few days or a few months and people start talking. And everything is hush, hush. Because societal norms tell us talking about mental illness isn’t the same as talking about someone who is battling cancer or severe asthma or a broken arm.

Well I have news for you: It's time we shatter those "norms."

And those of us who have fought these fights and who are still trudging through the pain and desperation and isolation that is mental illness could use the same support systems that other sick people receive.

More important to us than the flowers, cards, and meals you might send is simply your willingness to listen. To look us in the eyes and accept us for what we’ve been through, where we are right now, and what we will face each and every day and night for the rest of our lives.

Don’t be afraid to know our stories. We’re facing our fears, and we want you to, too.

Be open to us opening up. Give us hugs when we cry. Send us a laugh when you notice we’re down. If we’re too hyper, gently check in and ask if everything is on track with our treatment plan. It feels good to be acknowledged and cared for by those we love.

I have several close friends who do all these things and more and they make all the difference in the world. And of course my husband who is my better half, my voice of reason and the peace to the storm of what is inside me always knows when to step in with the right words to soothe me and keep me centered.

 

I will remember 2013 as the year I took the greatest leap I’ve ever taken. The year I jumped forward with sharing my words. The year I chose to only look back on the past in order to shift the future into better focus.

The year I did what I was afraid to do. And I haven’t even pierced the surface yet.

Ever been snorkeling, or better yet, scuba diving? {My husband is obsessed with snorkeling. He’s spent hours bobbing on the surface of the various tropical waters we’ve traveled to. I think it's cute.} He knows there are treasures down there. Which is why I’m so excited for my plunge into 2014 with This Is My Brave.

But first I’m looking forward to tomorrow. We're ringing in the New Year with my oldest girlfriends and their adorable kids and fun-loving husbands. It’s the 2nd annual #RomperRoomNYE2013 bash (follow along on Instagram!) and with 8 kiddos plus a 2-month old, the adults will be lucky to make it to the ball drop when we'll clink our champagne glasses with a toast to 2013 and what lies ahead in 2014.

My salute to this past year is composed of heartfelt gratitude for the support of This Is My Brave and our mission to encourage people to talk openly and often about mental health issues in their communities. The year ahead will no doubt be filled with learning experiences as I navigate unknown territories, but I am eager to grow and evolve, to bring these crucial conversations about mental illness into the spotlight.

Twenty-thirteen was the year I learned that facing my fears means enjoying the jump.

 

Why I Write

Why-I-WritePhoto Credit: dawolf- via Compfight cc

I write to show the world the invisible parts of me.

I write because people need to know what mental illness looks like. It looks like me. A young mom of two feisty preschoolers with a loving husband by her side.

I write because it’s too hard for him to talk about the four times his wife slept so little her brain was buzzing out of control and he had to sign the papers. Talk with police officers. Visit the psych ward. Hold down the fort while I got well.

I write because my kids are too young to understand what their mommy experienced before they were born, when they were little. And I want them to know all of it. I’m hopeful they’ll wrap their arms around me with pride and love when they read all I’ve written.

I write because I want to make a difference. I’m over the old-school philosophy of “some things are better left unsaid.”

Said who?

The truth is, when things go unsaid, that’s when tragedies happen.

I write because I’m almost 35 and no one ever knows how much time is left. I don’t want to regret not speaking out. I want my story heard.

I write because although I’ve found the courage to disclose my illness, so many others are still suffocated by their conditions. They may be feeling defeated by the mental illness they’re battling. And they’re not quite ready to talk or write.

But once they push past the anger, the fear, the disbelief and the shame that their illness dropped onto their shoulders, there will be plenty of time for a coming out party.

They’ll combine voices to put the power of unity behind the message, take a look around and communicate how good it feels to have this weight lifted off their shoulders. A weight that never should have grown there in the first place.

I write because I found my purpose. I write to help others find their brave.

~~~~~~~~~~~~~~~

My book is now a Snippet! To read my short e-book entitled Find Your Brave {a manifesto}, click HERE to download Snippet in the Apple store. It’s the fun, new interactive way to read quick, engaging e-books.

The Thanksgiving Clock

4236278556_cef6edb710Photo Credit: Brandon Christopher Warren via Compfight cc

Last year at Thanksgiving time, our world was turned upside down when our daughter's health was threatened by a disease neither my husband nor I had ever heard of. She spent ten days in the hospital while the doctors tried to figure out what was causing our baby all that pain.

It was one of the hardest, most scary times in our life as a family.

Finally, after tons of tests, three different IV antibiotics including vancomycin {traditionally known as the drug of "last resort"} and no changes, they moved forward with a 12-hour procedure called IVIG. The morning after the treatment, she perked up and her personality returned. The relief we felt was immeasurable. Forty-eight hours later we were going home.

 

In our daughter’s hospital room, there was a huge digital clock displayed on the top of the wall opposite the bed. You couldn’t miss it. The numbers glowed red as you watched the seconds of your life pass you by, morning, noon and night. It didn’t make a sound, but it didn’t need to.

There were plenty of moments I caught myself staring at the clock while my daughter napped. I wanted to reach up and snatch the seconds that were slipping away. Time was moving too fast. It was disappearing before my eyes. If I could only grab onto time and tuck it away, I'd make sure I didn't waste it.

 

Watching time that closely changed me.

 

The big red hospital clock taught me to count my blessings. Not just at Thanksgiving time, but every single day of my life. Because I'll never know when my time will be up. It was a brilliant reminder that even when we're not paying attention, time is passing silently in the background of our lives. I want to make every moment count.

These days I sometimes stand by the clock in our kitchen to hear it tick. It only takes a few seconds of listening to the tick, tick, tick, to be reminded of how precious life is and how it’s important to savor as much of it as I can and to be thankful for all the seconds which when added up equals my time here.

I'm thankful for time this year. Time with my family and friends, time to work at what I love, and time to admire all the extraordinary people I'm meeting along the way.

Happy Thanksgiving, everyone. Be sure to count your blessings. Tomorrow and every day.

 

"Tell me, what is it you plan to do with your one wild and precious life?" - Mary Oliver

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So long, self-doubt

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Why does self-doubt seem to know exactly when to punch you in the gut and knock the breath out of your chest so fiercely that you wonder if what you’re doing with your life is even making an impact?

A month ago I took the greatest risk of my life thus far by launching our Kickstarter for This Is My Brave, and it went above and beyond my wildest expectations. I thought to myself, “Yeah. $6,500 in 31 days is a lofty goal, but I’m fairly confident we’ll get there.”

The love and support that poured out from our friends and family and people who we hadn’t even met in the form of donations and words of encouragement was both overwhelming and exhilarating.

There are so many people who are just as passionate as we are about spreading messages of hope and inspiration while at the same time silencing the stigma surrounding mental illness. We raised over $10,000 for our show’s mission and I felt like we were on top of the world.

But the emotional high I was surfing on came crashing down like a monster wave when the news of the Deeds' family tragedy broke on Tuesday morning. The weight of the story was like a 50-pound brick on my heart. It was all I could think about. I wanted to scream “THIS COULD HAVE BEEN PREVENTED!” to every person I ran into in my daily comings and goings all week.

And then I met someone who understood.

Have you ever had one of those moments when you meet someone new and you can tell after talking with her for five minutes that she just "gets" you and although you were strangers six minutes earlier, it feels as if you've known her for ten years?

It happened to me on Thursday and was the highlight of my day. Once I got my baby girl down for a late nap, I immediately took pen to paper. A piece of me still wants to prove to my mom that she was wrong. That I've received nothing but overwhelmingly positive support for opening up about living with mental illness, especially from the moms at my son's preschool. The very group she thought might shun me. Back then my mom didn't realize that by keeping quiet about what I was going through she was actually adding to the stigma surrounding mental illness. We were all so new to it eight years ago. And I don't blame her for wanting to protect me. She's my mom, and moms don’t ever want anyone to hurt their babies.

We've come a long way since then and both of my parents {and my in-laws} are very supportive of the advocacy work I'm doing now.

This sweet mom whose daughter has been in my son's class all fall, yet I only met this week. She said something to me as we were chasing our toddlers out the door after dropping off our two older kids in front of their classroom. And I know will stick with me forever.

"You must feel such a sense of accomplishment and pride in what you're doing and how many people you're impacting with This Is My Brave."

And do you know what my response was? Of course I later thanked her for her kind words, but my immediate response was, "I feel like I'm not doing enough."

Part of me felt compelled to blog about the self-doubt that crept into my bones this week to remind myself that what I'm doing with This Is My Brave is pretty spectacular. Even though in the wake of the news out of Virginia this week I feel like it's only a teeny sliver of hope. A faint glimmer of the desire to improve the way society and our government deals with mental illness.

 At least it's a start.

We talked for an hour while our 3-yr-olds ran around and explored every corner of the playground. I could have talked with her for the entire rest of the afternoon. But alas, the temperature won out and after running around with no coat on, baby girl was adequately frozen and ready to call it quits. I gave my new friend a hug as we said goodbye and I'm already looking forward to our next impromptu playdate with our littles.

While driving home my thoughts drifted to how the sky looked similar to the way it did in late October of 2008 when I was released from my week-long stay in the hospital after having experienced postpartum psychosis. My heart aches for the Deeds family because they weren't able to get the medical attention and treatment that their son so desperately needed. They should have been visiting him in the psychiatric unit of the hospital today, but instead they are planning his funeral.

This isn't right.

We need the laws changed so that we can protect these individuals from themselves and others when they are so ill. And we need nets, as my friend Glennon so vividly described in this post. We need so many nets.

This Is My Brave is my effort to create a net.

And although I know that I want my next step to be petitioning our government for changes to our mental health system, my focus right now is on this show, my heartfelt contribution to changing the way people feel about mental illness.

And hopefully, in turn, it will inspire people to come together and create actions which will facilitate the change we so desperately need.

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