A Memorable First Day of School

Memorable First Day of School 4Memorable First Day of School 3Memorable First Day of School 2

First Day of School

Today was my kids' first day of school and although they were excited to meet their new teachers and see if any of their friends were in their classes, no one was more excited than me. I love back to school time. I had been dreaming of 7-hour, uninterrupted work days since they started preschool four years ago.

Don't get me wrong, I love spending time with my kids. I love the fact that I'm able to work from home and my non-profit work is so flexible that I make my own schedule. But having worked in 15-minute, 1-hour, and 2-hour increments for the past 3 years, I was finally ready to have a regular workday. I envisioned seeing the kids off on the bus at 7:45am, working for 7 hours, then picking them up at the bus stop. My hope is that with our new schedule I'll be able to have more work/life balance with those 7 hours of uninterrupted work time while they're in school.

First Day of School Drama - chairWe had a great 1/2 week vacation at the beach with our friends, and returned home Sunday afternoon. To celebrate the start of school, and the fact that my tushy would be spending more time in my home office working, I made a trip to World Market to see about buying a new office chair. I found the perfect one - on sale, too! My new office is starting to look more and more like the productive workspace I was hoping it would become.

This morning was the big day. I got the kids up at 6:30am and made them and easy and fun breakfast (thank you frozen french toast sticks), packed their lunches, and took a few photos before my husband and I walked them to the bus stop. They were all smiles waiting for the bus and Owen agreed to walk his sister to her classroom since we had missed Meet the Teacher day last week while we were at the beach.

The bus arrived right on time and we sent them off to school with kisses and hugs. The bus driver gave us parents all a knowing wink and told us to enjoy our days. I couldn't wait to get started in a nice, quiet house which was all mine for the next 7 hours.

Memorable First Day of School 1For a second I contemplated making myself a Bloody Mary to celebrate the occasion, as one of my best friends from high school had sent me a bottle of famous Natural Blonde Bloody Mary mix - a specialty product we had tried on our girls' trip to Charleston back in April. Then my productive side kicked in and decided to save the drink for Sunday brunch instead. Good thing.Memorable First Day of School 5

Ben was packing for a quick business trip to Denver while I figured I'd use some of my time to bake some banana bread with our spotted bananas. The kids would have a nice after school treat for their first day. Got it into the oven and set the timer, grabbed a mug of coffee and sat down at my computer to start my first glorious full day of work.

Thirty minutes in, I got a call from school.

At first I was worried one of my kids was sick. But the nurse quickly assured me Vivian was fine, but that she couldn't be in the classroom since they did not have her completed health forms.

F*@&#@&-A!

Parent of the year over here. I thought I was winning when I ordered their school supplies in June when we got the email from the PTA.

I nearly broke down in tears as I was talking to the school nurse. All I could think about was my little girl in tears because I was going to have to pick her up. I knew she'd be devastated and I'd feel like a terrible mother for ruining her first day of Kindergarten.

I asked the nurse if she could stay at the health office until I called the pediatrician to see if they could fax over her forms. (I was pretty sure her health records were up to date, and that I'd just forgotten to turn them into school, but I was freaking out a tiny bit that I missed the boat all together and she'd need a complete physical which could take who knows how long.) The nurse said that was fine and I assured her I'd call back as soon as I spoke to the secretary at the pediatrician's office.

The hold time during that phone call seemed to take an hour.

Finally I got through and told the secretary I felt like the world's most awful parent. I asked if she could please look up my daughter's record because I forgot to turn in her forms and today was her first day of school.

Thankfully, her health record was complete, but the doctor who did her physical wasn't in today and she'd need to sign the form before they could send it to school. So I'd have to wait until tomorrow. I pleaded and asked if there was anything they could do. She said I'd need to come in and fill out the top of the form and they'd see, but they couldn't promise anything because they had patients to see, etc. I said I'd be over right away, and may have cursed (loudly) after making sure I had hung up.

I didn't care anymore about having a day to myself to work. I didn't want to disappoint my baby. I felt like such a failure. I screamed at my husband for not helping me remember things like stupid health forms. He said he didn't even know they needed health forms. (Of course he didn't, because it was always my responsibility. Moms are in charge of everything.)

Instead of turning into a sobbing mess, I decided to just do what I could do.

"Take the banana bread out of the oven or turn it off before you leave!" I yelled as I ran out the door.

Driving over to the pediatrician's office I told myself that there are worse things that could have happened, and that if she has to come home today and start school tomorrow, it's not the end of the world. I could figure out something to make it up to her.

To make a long story short, the secretary said she'd do her best to get another doctor to sign the form and she'd fax it over during the morning. As I handed over my credit card to pay the $15 administrative fee I told her to charge me extra for messing up. She laughed. I took that as a good sign that she'd take pity on me and help me out.

On the phone again to school, I told the nurse they'd be faxing over the forms. Within 20 minutes I had a call back saying they got the forms and she was walking Vivian back to her classroom.

Parenting crisis averted.

 

They both had awesome first days of school and Vivi didn't even mind missing "morning work" in class since she did it while she was waiting in the nurse's office. The first thing she noticed when they walked in the house was the smell of banana bread. It turned out to be an eventful and memorable first day of school. Here's to a full day of work (and school) tomorrow. Cheers!

 

How I Wish My Doctor Would Have Explained My Bipolar Diagnosis

How I Wish My Doctor Would Have Handled My Bipolar Diagnosis Looking back on my bipolar diagnosis nearly eleven years ago, there are many ways my doctor(s) could have handled explaining the news to me. Only now am I able to clearly see the advice and encouragement which would have made my recovery journey a little easier.

A diagnosis of mental illness is not a life sentence.

When I first heard the words "Generalized Anxiety Disorder" and "Bipolar Disorder" I was devastated. The doctor may have well handed me a slip of paper that said: BROKEN BRAIN and MENTAL PATIENT, because that's how those labels made me feel. Instead, I was given a diagnosis and left to figure out what that meant. I wish my doctor would have taken the time to assure me that yes, I may have bipolar for the rest of my life, but that it was treatable and manageable and that I'd be able to have a full and rewarding life despite my diagnosis.

Keeping a journal or mood chart would help me reach a recovery path sooner.

I wasn't introduced to the concept of the mood chart until several months into my diagnosis. My dad was the one who from the beginning encouraged me to keep a small journal where I could jot down the date, the meds I took (and dosages), how I felt that day, and any side effects I experienced from the meds. It was a simple activity that helped me to get a handle on my illness and I encourage everyone to utilize it no matter what type of diagnosis you encounter. Looking back at my old journals sometimes makes me sad because I remember how sick I was back then, but I also realize how far I've come.

You may have bipolar disorder, but that doesn't mean you can't have children.

One of the things that most devastated me when my mental illness first emerged was an intense fear of not being able to fulfill my dream of one day becoming a mother. I don't remember many of the doctors I saw during the first year following my diagnosis ever broaching the topic of motherhood, except for one. The consultation with the doctor who listened to my concerns over not being able to have children provided me hope for the future. He assured me that wasn't the case, and that by working closely with my doctors and putting a support system in place, a family was indeed something I could have. Within eighteen months after that consultation I was pregnant with my first child.

Learning to protect your sleep will be your greatest advantage next to your medicine, for managing your condition.

I am a night owl. I've tried to flip my preferences, by forcing myself to go to bed earlier in order to wake up before the sun. But I just love the way the house gets quiet after the little ones have been tucked in. There are plenty of nights when I have the motivation to keep burning the midnight oil, but experience has taught me that I will only pay for the lack of sleep in the days that follow in the form of erratic moods. Maintaining a regular sleep/wake pattern has been crucial to my long-term recovery and I wish I would have known this earlier.

The sooner you begin talking openly about your struggle, the sooner your true healing will begin.

I hid my struggle for many years because I felt so isolated and embarrassed. I was convinced that none of my friends or extended family members would understand. I thought everyone would think I was "crazy" for having suffered the number of manic episodes I had endured. The feelings of shame were so intense that I began searching for stories of other people who had made it out of the darkness. I told my psychiatrist that I wanted to start blogging about my experience and then write a book, and she immediately discouraged me from disclosing. I'm glad I didn't listen to her advice. The point at which I made the decision to write openly about my mental illness was the beginning of a better life. One in which I didn't need to feel ashamed about a condition that affected my brain.

 

What do you wish your doctors would have told you when you were first diagnosed?

 

Mental Health Stories in the news

We're seeing more and more stories of individuals overcoming mental health struggles in the news. Stories of resilience and pride are emerging, as we work to educate society about the battles in our heads, these invisible illnesses that so many Americans live with. I'm overwhelmed with gratitude for the work I get to do each day because I know that by putting our stories out there, we're slowly and steadily giving permission to so many others who haven't yet exposed themselves for fear of being judged. The climate is changing, although we have a long way to go.

Mental Health Stories in the news

More and more we learn about people who have lost their battle with mental illness, and the family members who are telling the truth rather than covering up the fact that they lost the person they loved to suicide. Task forces are being created, families and communities are coming together to force change when it comes to mental health awareness. It's an uphill climb, but we're clawing our way up the mountain.

A few months ago I had the privilege of sharing my story with an incredibly thoughtful and engaging writer. The story came out on June 2nd, on the front page of the Washington Post.

The support surrounding the release of the article was outstanding and so positive.

A month later, This Is My Brave was featured in a 4-page article in O, The Oprah Magazine. Once again, the support flowed in, and tons of interest from individuals all across the US and Canada for hosting new shows for next year.

Mental Health Stories in the news 2

It's been a busy time. As I work with my volunteers and Board members to make the best decisions for strategically guiding our organization forward, I'm also trying to stay aware of my own mental health. I am learning to say "No" to certain opportunities simply because I cannot do it all. Even though I want to be able to get involved on so many different levels with the initiatives being created, I have to protect my health and emotional wellbeing.

When we take care of ourselves first we're able to focus on the important things and tough stuff doesn't feel as heavy.

I make sure to pay attention to signals my body sends me. If I've been at the computer too long, I get up and out of the house. Lately this has been taking the kids to the pool to enjoy the sun and fresh air. I find time each day to turn on an at-home workout DVD and get in 30 minutes of yoga or cardio (just ordered a new Beachbody program that I'm really excited about - Country Heat!). And am counting down the days until our beach trip next week, trying not to stress about the fact that we get home on Sunday and the kids start school the next day.

Life is good.

I will not hide the fact that sometimes I do feel nervous about what the future holds. I can only live in the present, plan for the future, and stay true to what I believe. That our stories provide hope, and by helping to bring these stories into the light we can hopefully be the change we want to see in the world.

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Clarity. We all need to talk about mental illness, celebrity or otherwise

I've been thinking a lot about the post I published yesterday about my inability to relate to Kristen Bell opening up about her anxiety and depression. I don't know why it struck me to write about my feelings, but I wrote them out and put it out there, and the more I thought about what I wrote, the more I began to disagree with myself.

Sure, it's hard to relate to a celebrity because their lifestyles seem so dramatically different from the average person who struggles to pay bills or isn't able to get appropriate mental health care because they don't have insurance. But this lack of being able to identify with a famous person shouldn't have any impact on my appreciation for their ability to share their story about overcoming mental illness and stigma.

I'm sure it took a great deal of courage for Kristen to open up in that interview, the same way our This Is My Brave cast members conjure up a certain amount of bravery to audition for, and then share their stories on stage through our shows.

I'm embarrassed to admit that I think what I was feeling had more to do with envy than of not being able to empathize with a famous person sharing their story of mental illness. I'm envious that a celebrity has a much bigger platform than we do, and therefore when they share their stories they immediately garner a TON more attention than we've seen for all the hard work our organization has done over the past three years.

One of my favorite writers once wrote about envy, and I found myself re-reading her words today. Glennon reminded me today that: Envy is just unexpressed admiration. It’s respect holding its breath.

I constantly need to remind myself that we need to focus on the important work we do and that when the time is right, I'm confident our organization will attract the attention of national media. In fact, it may begin happening sooner than we thought.

This is my life's work now, this work of storytelling. My organization encourages individuals to share their stories to end the stigma. I have no right to say that a celebrity sharing her story is any less impactful than a member of my own community.

Kristen, blog reader Jill, and anyone else I may have offended from my post yesterday, please accept my apology. Thank you to all who join us in the effort to end stigma, celebrity or not.

Clarity. We all need to talk about mental illness, celebrity or not.

On relating to Kristen Bell's mental illness disclosure

Last week Kristen Bell became the latest Hollywood star to mention that she's not ashamed for taking medication for her anxiety and depression, and the news of her mental illness disclosure went viral. I'm grateful she used her fame to bring awareness to an issue that touches so many of us, but at the same time felt like I couldn't quite relate, even though I've been affected by the same disorders. Listen, I'm all for celebrities sharing their stories. They have platforms much, MUCH, bigger than mine, and the more people who open up, the better. The more attention we can draw to the cause, the better. The more we normalize mental illness, the better.

[embed]https://youtu.be/mYUQ_nlZgWE[/embed]

I guess I just can't really relate to a celebrity. I've never met one myself, although I'd imagine most of them are down to earth. They are human, too, after all. Albeit humans with seemingly endless streams of money, and access to practically any doctor they would ever need to see. They experience mental illness the same way the rest of the population does, only with privilege. Many of them receive the proper diagnosis, effective treatment, and manage their conditions successfully.

On the flip side, no matter how much wealth and access to care they have, some we lose to suicide, like Robin Williams.

Now let me back up for a moment and acknowledge the fact that when I experienced my most serious battles with my mental illness, it was partially my privilege which allowed me to be able to get well. I recognize this.

What I'm trying to say is that to me, when a celebrity goes on camera and talks about having gone through a mental health issue, it's not nearly as impactful as when regular people I meet through my advocacy work share their stories. It's also not the same as a celebrity figure who has made a commitment to fighting the stigma surrounding mental illness by continually sharing her story - the way Demi Lovato has. There's a big difference between mentioning the fact that you take medication for anxiety and depression, and making it part of your purpose in life to educate people.

Also, last time I checked Psychologists weren't licensed to prescribe medication.

When I started this blog my goal was to simply inspire one person not to give up. To let her know that there is life after a mental illness diagnosis and multiple psychiatric hospitalizations. That the months spent crying and sleeping and barely eating because you're so nauseous even the thought of toast turns your stomach, that all those months and maybe even years spent suffering could come to an end.

I truly believe finding other people's stories online helped me to find my recovery path. Which is why when I found the right time to begin writing out my own story, I went for it. I knew that being anonymous wasn't the answer. But at the time I felt a responsibility to my family when making the decision on whether or not to use my real name in my writing. My disclosure would affect them, too, after all.

Then, after eighteen months of blogging, I reached a point where my anonymous writing had reeled in a regular paid blogging gig for WhatToExpect.com, and I wasn't willing to go on without receiving recognition for my work. I wanted to do my part to stand up to stigma, and I knew the best way to do that was come out of the closet about my mental illness. So I did.

And none of my fears came true. The fear of losing friends, of being discriminated upon, of being looked down upon. None. Instead, the response was the complete opposite.

Which is why I am such a strong believer in the power of storytelling. Yes, I come from privilege. But in our This Is My Brave shows there are plenty of people who have come forward to share their stories and they didn't have the same access to care that I did. They still made it out of the darkness. Their stories are extraordinary.

The power behind sharing our stories lies in the ability to comfort others. In our country alone, one in five adults is living with a diagnosable mental illness. We are all affected by it, whether we realize this or not. Mental illness is mostly invisible, and because of both internal and external stigma, and the fear it instills in people, those suffering often times do not reach out for help. They feel isolated, like they are the only one who has ever dealt with that condition.

It's not true. When we share our stories openly, people suffering in silence realize they are not alone. And they see that if someone like them was able to get well, they can too.

Which brings me back to my point about celebrities. Celebrities are people just like you and me. They're human. But given the world they live in, my guess is that it's hard for an average American to relate to their stories.

I urge you to visit our This Is My Brave YouTube Channel where you can view over 100 true, personal stories of overcoming mental illness from regular, everyday people. Teachers, students, small business owners, stay-at-home-moms, community service workers, and the list goes on.

This month, for Mental Health Awareness Month, we have five all-new This Is My Brave shows on the schedule. Our Greenville, South Carolina show was this past Thursday night and it was incredible. Our Iowa City show is this coming Friday night, the third annual DC-area show is this Sunday. And finishing out the month on the same date, May 19th, are our Chicagoland and Denver shows. All our new shows will be added to our YouTube channel this summer.

Deciding to share your own struggle with mental illness is a personal choice. It's This Is My Brave's goal to inspire people to #LiveBrave which means when you're ready, and you find the right opportunity to share your experience with someone, whether privately or publicly, you will. Your ability to be brave will give the other person the comfort and solace they need to feel understood. We've seen it happen through our guest bloggers and our live show presentations. It's life-changing and extremely powerful.

Whether you get that feeling from a celebrity talking about her experience, or someone you know and love in your life, the point is that together we can dissolve the stigma surrounding mental illness by sharing our stories.

LiveBraveIf you decide to #LiveBrave with us, we've designed an overlay you can add to your Facebook profile pic and Twitter profile pic. It's easy, simply follow the instructions here: http://twibbon.com/support/live-brave

 

What I Want You To Know on World Bipolar Day 2016

World Bipolar Day 2016Today is the third annual #WorldBipolarDay. This day is important to me because it is helping to open up and continue the conversation surrounding a mental illness that is misunderstood in our society - bipolar disorder. I was diagnosed over ten years ago. My world was turned upside down when I suffered two manic episodes in one month, each requiring hospitalizations. Soon thereafter, I received the diagnosis of bipolar disorder and spiraled into a severe year-long battle with depression and anxiety. I felt utterly alone, scared to talk to anyone about it outside my immediate family. My illness told me I was broken, worthless, and that I'd never get better. I believed it for over a year.

But it was lying.

I eventually found the right medication, and I did get better.

But then I got sick again when I was trying to protect my kids. I thought as their mom I knew better. I should have listened to the doctors.

Hindsight is 20/20 though, I had to learn the hard way. I don't regret my decisions. They brought me to where I am right now.

I'm no one special. I'm just a person who was handed a diagnosis, went through a fierce struggle, learned to accept it, and wasn't willing to allow society to intimidate me, judge me, and discriminate upon me for something that wasn't my fault.

I am playing the cards I was dealt, as my favorite author, Cheryl Strayed, has so wisely stated.

You don't have a right to the cards you think you should have been dealt. You have an obligation to play the hell out of the ones you're holding. - Cheryl Strayed

I share my story because I know there are people out there searching for stories of resilience right now. I know because ten years ago, I was one of them. If my story can help just one person understand that they can overcome bipolar disorder, than I've accomplished what I've set out to do.

Never give up. Reach out for help. Your story matters.

My favorite Bipolar Resources:

Remembering This Is My Brave's beginning

Remembering the BeginningI've been neglecting my little, teeny corner of the Internet. Not because I haven't thought about blogging, it's that making the time has been a challenge lately. But after yesterday's This Is My Brave (year 3!!) Cast party, I felt drawn back to this space. My favorite mug within arm's reach, emblazoned with my favorite photo of our inaugural cast, full of steaming hot peach tea. Headphones plugged into my laptop, the rhymes of Ed Sheeran keep me company as I click a button to Add New Post. This is where it all started.

It started with a decision to tell my story nearly five years ago. Even if I told it without my name attached, I still made the choice to write about my experience living with bipolar disorder. I typed out the trauma of succumbing to two manic episodes in one month. I wrote about things like exercise and journaling that were helpful to me in finding a path to recovery amid the chaos of receiving a diagnosis.

IMG_3985I remember contemplating that I would name the blog, before those posts were even published, eventually settling on "Bipolar Mom Life" because I wanted to be searchable.

I remember feeling the wave of mental health advocacy begin to swell. I wanted to climb on, to be part of the monumental tidal wave of brave individuals who were working to drown stigma through their openness. So I grabbed my proverbial surfboard and started paddling.

Years of writing several posts a week, then writing for other websites, to landing my first paid writing gig. One thing led to another and then to another. This little blog became the catalyst for something I dreamt about but would never fully appreciate until it actually happened.

So, how did it happen? This Is My Brave has become what it is today because of the support that has emerged from the shadows. Friends, neighbors, co-workers, strangers. So many people ready to put their silence behind them. From extreme darkness comes the brightest lights, we've seen it time and time again through our shows. Our trials, trauma, and pain have taught us we are stronger than our struggles. We are compassionate souls, brave because we want to impact change. This Is My Brave is alive because in our communities everywhere live storytellers who aren't afraid to show their scars.

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We only had to provide the opportunity for them to share.

I may have made the decision to start a blog, but This Is My Brave wouldn't have ever taken off if it weren't for people believing in its mission, to end the stigma surrounding mental illness by sharing our true, personal stories through poetry, music and essay, and stepping up onto the stage.

Our stories are coming together in a huge tsunami which is threatening to drown out the concept of stigma all together.

I may have had my doubts that this project would be able to make the impact I hoped it would, but those insecurities have been silenced. Every single time we put the call out for storytellers they bring it. Our job of casting becomes harder each year.

IMG_3998Through vivid imagery you feel their hearts bleed out onto the pages. You also learn how they made it through the minefield of mental illness. Their resilience warms your heart and in the end you're glowing with pride for everything they've become. And that they've decided to selflessly share their strength with the world. This is the magic of This Is My Brave.

I hope you'll come see a show this May. We'll be in Greenville, South Carolina; Iowa City, Iowa; Arlington, Virginia; Denver, Colorado; and Valparaiso, Indiana. Tickets are on sale now.

Come and #LiveBrave with us.

Touched With Fire: a movie about bipolar's mania

TouchedFire When I received an email recently with an invitation from Mental Health America to attend a free screening of Touched With Fire a new film about bipolar disorder starring Katie Holmes and Luke Kirby, I RSVP'd immediately. It fascinates me to view my illness through the eyes of another person touched by this diagnosis. And this film was written, music composed and was directed by a man who lives with bipolar illness.

Screen Shot 2016-02-05 at 11.37.54 PMFilmmaker Paul Dalio was diagnosed with bipolar disorder at the age of 24, and like me, struggled to accept the label. He said he romanticized the mania, pointing to famous poets and writers who shared the condition. He's developed a strong sense of pride and I could wholeheartedly relate. It seems his experience over the years has led him to a place I find myself in now: able to live in harmony with bipolar, with a loving family and a full life.

Touched With Fire screening attended by This Is My Brave

Several of my volunteers and one of our new This Is My Brave interns joined me at the screening. We all were impressed by the film, it's ability to express the artistic side of the disease, how family members struggle with how to help or walk away, and what happens when one refuses to comply with medications and treatment.

Plus, it's a love story. That was probably my favorite part about the movie. And it has a great ending.

I did have a concern as I reflected back on the scenes and the dialogue though. So many moments brought me back to my initial diagnosis and the years that followed.

Like when my parents kept referring to what was happening to me as "episodes" which made me feel so broken. 

And when I questioned whether I even had bipolar disorder. I didn't think I needed the meds.

And the times I went off my meds (to protect my unborn babies) only to end up manic and hospitalized within a week both times. 

I worry that the film will be dangerous to those who are not in a solid place of recovery. It's been ten years since I've been diagnosed. Coming up on six years since I've had a manic episode requiring hospitalization. I'm at a place where I know that I will never go off my meds. I know what my triggers are and I know how to manage them. I take such better care of my body and my mind compared to where I was back when I was still learning to understand my condition.

{Q&A panel discussion following the screening, from left: Debbie Plotnik (MHA), Paul Dalio, Dr. Kay Jamison, Paul Gionfriddo (MHA President), Luke Kirby}

Someone who is early in their recovery journey may be tempted by the film to get rid of meds, to go back to life before being medicated because they were so much more artistic (not true). Paul, the filmmaker, even commented on the fact that he's so much more able to utilize his creativity to attain his goals and dreams being on medication and stable. Something that Dr. Kay Jamison taught him when they met and she became a mentor to him, a connection made possible by his own psychiatrist.

Speaking of Dr. Jamison, she makes a cameo in the movie and I got to say hello to her after the screening and Q & A. I told her how much I admired her work and how I attended one of her book signings in 2007 and asked her about pregnancy and medication. Her advice to me was to stay on my meds, which I did not heed and learned my lesson the hard way. She was very glad to know of the work This Is My Brave is doing and I'm hopeful she'll be able to attend a local show in the near future.

{David, me, Dr. Kay Jamison, and Annie after the Q & A following the screening of Touched With Fire}

You never know how someone will respond when you put your story out there, when you put your art out into the world. Paul has taken a risk that was no doubt worth taking. My hope is that the film will not live up to my concerns, but instead serve as a springboard for important conversations surrounding mental illness and mental health that need to be taking place in communities everywhere.

The film opens tomorrow, February 12th in New York City and Los Angeles, and on February 19th nationwide in select cities. You can watch a trailer of the film HERE. This Is My Brave is hosting a Meetup for anyone in the DC-metro area who would like to come together to support the film's opening weekend. Click here to sign up to meet us on Friday at the Angelika Film Center in Fairfax for the 7pm-ish showing.

8 Things I Want People To Know about Postpartum Psychosis

8 Things Postpartum Psychosis  

I love all the media attention these past few weeks on postpartum depression. It’s so important for us to keep these conversations going so that more women and families understand that they are not alone and that it’s okay to reach out for help because treatment works. It’s wonderful to see celebrities like Hayden Panettiere, Drew Barrymore, and Alanis Morissette opening up about their stories because when people we admire, women we assume have it all together, open up and show us their struggles, we pay attention.

I’m just a mom, with a 5-year old little man, who wants to prove to the world that our struggles don’t define us. They only provide us with opportunities to make a difference in the world. I’m beginning to work on explaining this to him every chance I get.

- from a post I wrote dated Sept 19, 2013

We also need to be talking about postpartum psychosis. I was diagnosed with PPP a month after my first child was born, and suffered from antenatal psychosis (psychosis during pregnancy) during my second pregnancy. Both times I had been avoiding my medication for bipolar disorder because I didn’t want to expose the baby to the risks.

I want to share what I’ve learned. Maybe then, more people will understand postpartum psychosis the way they’re beginning to understand PPD, and the women and families who experience it will feel as supported as those who go through postpartum depression.

      1. Women who experience PPP are NOT monsters. Yes, it’s true that untreated PPP can lead to infanticide, but that doesn’t mean it’s the mother’s fault. She was sick and needed treatment, and the more we’re able to identify the symptoms and the sooner she’s able to get treatment, the chances of her actually harming her baby can be avoided all together.
      2. We can be good at hiding the onset of PPP. Having been diagnosed with bipolar disorder two years before I had my first child, I knew what the beginning of a manic episode felt like. I was euphoric, energized despite the severe lack of sleep, and highly social, planning playdates when obviously I should have instead been resting. I hid my initial symptoms for fear of having my son taken from me. I was terrified of failing as a mom.
      3. Family and spouses/partners are usually the first to know something is wrong. If it weren't for my husband, who knows what could have happened. The morning my husband called 911 to have me hospitalized, I woke at 5am after having barely slept the night before due to the baby’s feeding schedule and my extreme mania. I was in the kitchen rearranging the items in our cabinets. My speech was pressured (had so many things to tell my husband but the words wouldn't come out fast enough), and what I was able to verbalize wasn't making any sense. He recognized these symptoms from my two previous manic episodes years before, combined with how little sleep I was getting, and immediately called 911.
      4. Sometimes the woman can’t even see how badly she needs help. Seeking help for psychosis symptoms is very different than seeking help for postpartum depression. Usually it is not the woman herself who seeks treatment, but the spouse/partner or family member who initiates treatment through hospitalization. After the birth of my first and during my second pregnancy, I became so ill that I couldn’t realize exactly how far gone I was. It was a gradual process, but once I reached a certain level of mania, the chaos in my brain took over and catapulted me into psychosis and it was up to those around me to find a way to bring me back. Involuntary commitment was what I needed both times.
      5. It can be difficult to admit symptoms. Some women have thoughts of harming their children, and some of them act on those violent thoughts. Stories like the one of Andrea Yates might make women afraid of reaching out for help for fear of being looked down upon by friends or family members. I was one of the lucky ones who didn’t have those intrusive thoughts, but it was still incredibly difficult for me to admit that I needed help.
      6. Although rare, there are predicting factors, and PPP can be prevented. Postpartum psychosis is much less common than postpartum depression. Although there are underlying conditions which can predispose a woman to developing postpartum psychosis, a diagnosis of bipolar disorder being the main factor, any pregnant woman is potentially at risk. Which is why we need to raise awareness around PPP the same way we are raising awareness around PPD.
      7. Breastfeeding isn’t the only way to feed a newborn. I put tremendous pressure on myself to breastfeed my first child. “Breast is best” was everywhere I turned during my pregnancy and I correlated my ability to feed my child from my body with how successful I was as a new mom. Not only was this wrong, it was incredibly unhealthy. With my second child, we had a plan to bottle-fed with formula from the start, which led to a much more enjoyable postpartum period as compared to my first month of new motherhood breastfeeding my son.
      8. Moms who experience PPP are good moms, too. If I would have known that experiencing this illness was not my fault, and that there were other moms out there who also had to be hospitalized following the births of their babies, it would have been a little easier. Which is why I share my story. If even just one person finds my story and she’s able to get help sooner rather than later, it’s all worth it.

A Weekend At Home

This is going to be a long, boring post. Bear with me. I feel the need to justify my blogging absence by writing it all out. If only for myself. It's been a busy couple of months in our household. At the end of August, Ben and I celebrated our 12th wedding anniversary surrounded by our friends and family. It just happened to coincide perfectly with the summer house concert we had booked with independent artist and now friend of ours, Shannon Curtis. The evening was the perfect way to mark our special day. Shannon's music was simply beautiful and she played under the big oak tree next to our house while the crickets chirped and the lights that Ben strung twinkled. My only regret is not taking more pictures, but I am glad I remembered to stay present and in the moment. It was a magical night to remember.

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The kids started school in the weeks that followed and I was busy helping our New York City team prep for their October show. The first weekend in September, my brother and I surprised my mom in Florida for her 65th Birthday. The look on her face was priceless when we both walked in the door, but lucky for her I decided not to Periscope or even photograph the surprise since she was still in her pajamas. You're welcome, mom. Instead we have a photo of us wearing bibs. I loved getting to see my Grandma, too, since I hadn't seen her since February which felt like so long ago.

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The second weekend in September Wear Your Label, a conscious clothing company out of Canada, invited me to emcee their fashion show at New York Fashion Week in New York City. The timing couldn't have been better, since that was the same weekend our New York City cast was getting together for the first time and I was able to attend and meet everyone. It was an awesome {albeit fast-paced} weekend. I loved meeting Kaylee and Kyle {the Co-Founders of Wear Your Label} and look forward to working with them in the future on another mental health awareness event.

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The third weekend of September was the Northern Virginia NAMI {National Alliance on Mental Illness} walk. Anne Marie and I hosted a This Is My Brave table and got to talk with lots of attendees about our organization and what we do. We sold a bunch of Brave tees and brave beads, and our cast member Laurie was there to help us and catch up. The weather couldn't have been more beautiful, to top it off.

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The last weekend of September I was invited to the DBSA {Depression Bipolar Support Alliance} annual conference in Chicago to present during the Peer Showcase night, the first evening of the conference. I was joined by Canadian comedian David Granier of Stand Up for Mental Health, and my friend, singer/songwriter Shannon Curtis. We kicked off the conference with storytelling, comedy and music, and everyone had a lovely evening. The weekend was full of incredible speakers: Dese'Rae Stage of Live Thru This, Mariel Hemingway, and Andrew Solomon. I met so many amazing, like-minded people, and I felt at home.

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Just this past weekend, on October 4th, This Is My Brave had our first show in New York City. I can't even begin to describe how proud I am of our cast and production team. I was beaming from the moment the curtain went up until I closed my eyes to fall asleep that night, exhausted with the joy of what they had accomplished.

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My parents flew in from Florida to spend the weekend with me and see the show. Despite the threats from Hurricane Joaquin, we made it. We drove to Long Island on Friday to see my Uncle Marty and his partner Ralph, and had a great time catching up with them before heading into the city on Saturday. I was able to attend the second half of rehearsal on Saturday, and then spent the rest of the day and evening getting last-minute details ready for the show. Sunday morning, my dad and I went to the Today Show with signs to try to get some free publicity. The show touched me on so many levels and I loved seeing and hearing how the event impacted all who attended. Monday was my dad's birthday, and I am so thankful I got to celebrate it with him and my mom over a lovely dinner after the show. Living over a thousand miles apart makes me so grateful for the moments we get to spend together.

This weekend I was supposed to host a table at the AFSP {American Foundation for Suicide Prevention - there will be a quiz on all the mental health organization acronyms at the end!} community walk in DC, but after being in DC on Friday for the International Bipolar Foundation breakfast, I knew I needed a day off. That, and realizing the tornado inside of our house was screaming to be tamed, I made the decision to take this weekend to re-group, clean and spend time at home with my family.

I spent yesterday attacking one room at a time with a duster, the vacuum, and the desire to give everyone a fresh, clean start as we tumble into autumn. As I cleaned, I listened to Jenny Lawson's new book, Furiously Happy, and found myself having to stop what I was doing and tweet out quotes it was so good. It made me want to get serious about writing my own memoir about living with bipolar, which is something I desperately want to do someday. But at the moment my focus is on This Is My Brave, our seventh and final show of this year {LA's book launch event for Amy Ferris' Shades of Blue on November 19th! Details coming this week!} and planning for 2016.

I'm not going to lie. These past few months have been exhausting. But at the same time, they are what fill me up. It's hard to be away from my family, but I return to them more complete. It's an unbelievable feeling to know in your heart that you've found your life's calling, and I don't take it for granted. Whenever someone tells me how much my work touches them and it's so wonderful I'm helping so many people, I am overwhelmed. All I ever wanted to do was encourage people to be open and share their stories. It's only because people believed in me that this work is able to touch so many. I am so grateful people had confidence in my vision.

I can't help but let my insecurities creep in from time to time. Typically when I hear about a suicide or that someone I know is struggling with their own mental health. I feel so helpless, even though I've battled similar demons. Why can't I find the right words? Why can't I be a better friend? Why can't I make a bigger difference, help more people, stop the suffering?

I know it has to do with the issue of being enough and accepting that I am enough, and these are things I'm working on. This is not a plea for pity or praise. I'm just putting it out there because I want to be real, and I want my readers to know that I still have plenty of things I'm working on. Just because I've found stability with my mental health doesn't mean my life is perfect. If only it were that easy. Anne Marie reminds me nearly every week that we've accomplished a great deal in our first two years, and I know she is right. I know that I want This Is My Brave to grow slowly and sustainably, staying true to our mission of ending stigma through storytelling, which is exactly what we're doing.

Thank you to everyone who has supported me on this journey, especially my husband, parents and in-laws who are always willing to jump in and help with the kids so that I can attend meetings, conferences, and special events. I wouldn't be on this journey if it weren't for my friends cheering me on, my readers continuously reaching out to tell me how much they appreciate me being open about my story, and my growing This Is My Brave family for contributing to this dream. Sometimes it doesn't feel real, like when I saw myself on the cover of Bipolar Hope Magazine this week. I am full of gratitude for this life.

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Happy Holiday weekend, friends. Thanks for being on this journey with me.

Conversations on heaven

Rare Bird Anna Whiston-Donaldson book review We're in the midst of a season of change. I'm doing what I can to hold onto summer, while simultaneously longing for fall to begin already. I'm ready for brisk breezes, crispy leaves crunching under my Uggs as I walk to the bus stop to pick up my now-First Grader from another day at school, preschooler in tow.

With only a handful of potential pool days left, I piled the kids in the car last week for a couple of hours at our neighborhood pool before dinnertime. The air was warm, I had the radio on, and the kids were carrying on their own little conversation in the backseat while I sang along to a country pop tune. As the song came to an end, Vivian piped up and caught me off guard with a serious question.

"When are we going to die, Mommy?"

Whoa. Where did this come from? Had that last song mentioned dying as some country songs do?

Before I could even address her curiosity, her brother dove into his own explanation.

"When God calls you back to heaven, Vivi. He's the only person who knows when we'll die."

Wow. Are my four and six year olds really discussing death?

And before I could ask him where he had learned this bit of wisdom, I remembered.

I remembered how I told them about Anna's son Jack and his accident when they saw me reading Rare Bird last year. God called Jack home to heaven four years ago.

No one knows how much time we have. There are no guarantees.

I am not an intensely religious person, although I do believe in God and I believe there is a heaven. I do believe there is another phase after our lives here. I am hopeful I'll meet all the people I've loved through life in heaven eventually. My heart tells me this place we're in now is just the preparation for what's next.

Rare Bird taught me so many things, and I truly feel it's a book that everyone should read for the wisdom Anna shares within its pages. We never know when life will throw us a curve ball. Something that may knock us down so hard that we fear we may never be able to get back up. And yet, Anna did just that, and continues to face each day with grace and love and kindness.

I constantly think about life and death, and question whether I'm making the most of my time. I have my good days and bad days, like everyone else. I think as long as we love deeply and treat every day as the true gift it is, we're living a good life.

Jack lived a very good life. Much too short, but he's home now. In heaven with God. And as Anna says in this new video about the book, it's not as far away as she had thought.

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Rare Bird comes out in paperback in a week, but you can pre-order it on Amazon now.

Sending love to Anna, Tim and Margaret, this week and always. Thinking of Jack and the memories {and God winks} he blessed them with, some of which are described within the pages of Rare Bird.

Follow Anna's blog: AnInchOfGray, her Facebook page for the book, and her author page for info on readings and events.